Vienna, Va.,  April 2, 2024

Exciting News for YOPN Members!

We're thrilled to announce the relaunch of our popular podcast, Living Well Starts Here^SM, as a video podcast (vodcast) format!  Debuting on Tuesday, April 9, this exciting new chapter brings fresh faces and a dynamic, visual experience to our YOPN community.

Why the Change?

We're always looking for ways to better serve you, our YOPN members.  The vodcast format allows for a more engaging and interactive experience. You'll be able to see the passion and expertise of our new co-hosts as they delve into topics relevant to the Young Onset Parkinson's community.

Get Ready to Meet Our New Co-Hosts!

Living Well Starts Here boasts a fresh lineup of four rotating co-hosts who are ready to connect with you. Stay tuned for more information about these inspiring individuals!

How to Tune In:

Catch Living Well Starts Here on our website (https://yopnetwork.org/YOPN-Podcast) or subscribe wherever you listen to your podcasts.

We are ecstatic to share this new chapter with you!

Vienna, Va., February 19, 2024

Young Onset Parkinson's Network (YOPN), a non-profit organization dedicated to supporting individuals facing young-onset Parkinson's disease, proudly announces the launch of in-person events, YOPN LIVE!. This new initiative aims to bring the vibrant online YOPN community together in person through a series of local events throughout the United States.

YOPN Live is currently available in seven cities, including Washington DC, Rochester NY, and Los Angeles CA, with plans for expansion globally in the near future. The localized, in-person social groups are designed to foster a sense of connection, understanding, and support among YOPN members. 

Key Highlights of YOPN Live

• Local Social Groups: YOPN Live are social groups comprised of YOPN members who come together regularly. The frequency of meetings will be determined by each group, allowing for flexibility and responsiveness to the unique needs of each community.

• Member-Run and Funded: These local groups are not only supported by YOPN but are also entirely run and funded by their members. This model empowers individuals to actively contribute to the development and sustainability of their local YOPN Live community.

• Diverse Events: YOPN Live events encompass a wide range of activities, from casual gatherings like happy hours, cocktails, brunches, and dinners to family-friendly events and group fitness activities such as walks, hikes, and bike rides. This diverse array of options, dictated by each group, ensures that there is something for everyone, fostering a sense of inclusivity and camaraderie.

An Extension of YOPN

YOPN Live is an extension of the existing YOPN online community, meaning attendees must be registered members to participate in these in-person gatherings. This ensures a cohesive and supportive environment for individuals affected by young-onset Parkinson's disease. YOPN membership is open to all individuals impacted by young-onset Parkinson's disease, including care partners, friends, and family. 

About Young Onset Parkinson’s Network (YOPN)

Young Onset Parkinson’s Network (YOPN) is a nonprofit, 501(c)(3) educational and charitable member organization dedicated to helping those diagnosed with Young Onset Parkinson’s Disease (YOPD), the fastest growing segment of Parkinson’s Disease, live their best lives. Through our network, members connect, learn and engage with others who understand what they are experiencing. They gain access to programs and resources designed specifically for those living with or caring for those with the disease. With a growing membership worldwide, our members become part of a safe and supportive community to help navigate this life-altering diagnosis and chart their own path forward to live well and thrive. For more information, please visit http://yopnetwork.org.

Vienna, Va., September 26, 2023 - Young Onset Parkinson’s Network (YOPN), the only member-based organization exclusively focused on supporting the needs of the Young Onset Parkinson’s Disease (YOPD) community, announced today that it has been awarded a one-time, charitable contribution from Coverys Community Healthcare Foundation (CCHF).  Funding from this donation will help support YOPN’s Resource Navigator program designed to help YOPN members access mental wellbeing resources and support.  

“We are honored to be selected as a recipient by CCHF’s Charitable Giving Committee and are grateful that they recognize the value of our program,” says YOPN Founder Anna Grill.  “We rely on grants, sponsorships and donations to maintain a no-cost membership. With CCHF’s generous support we can expand the program beyond its initial pilot to help members manage the mental health and well-being aspects of dealing with a diagnosis of Young Onset Parkinson’s Disease.”

The Coverys Community Healthcare Foundation, Inc. provides grant funding and donations to organizations and innovative programs that improve patient care and safety, promote healthy lifestyles, and support individuals and organizations providing healthcare services. The development of the Foundation exemplifies Coverys’ dedication to being an affirmative and active corporate citizen in the healthcare community and the communities in which it operates.

Individuals with YOPD are diagnosed during the most productive years of their lives. They live longer with the disease and are at increased risk for non-motor symptoms of Parkinson’s Disease. Depression is one of the most frequent non-motor symptoms of Parkinson’s Disease. According to a 2022 study from The National Center for Biotechnology Information and the National Institutes of Health, risk of depression for people with Parkinson’s Disease is considered four times higher than the general population. YOPN’s Resource Navigator Program was developed to help its more than 800 members access the mental health resources and support they need to live well and thrive.

About Young Onset Parkinson’s Network (YOPN)

Young Onset Parkinson’s Network is a nonprofit, 501(c)(3) educational and charitable organization for those diagnosed with Young Onset Parkinson’s Disease (YOPD) as well as the individuals related to and/or caring for those with the disease. The organization has quickly become the first stop for all things YOPD and seeks to increase awareness of YOPD by providing information, resources, and services to help members strengthen their mind and body within a supportive community. Through its network, YOPN members have the holistic support needed not only to manage, but to thrive with this unexpected, early diagnosis. To learn more, visit www.yopnetwork.org.

Vienna, Va., June 14, 2023 – Young Onset Parkinson’s Network (YOPN) announced today it has earned the Gold Seal of Transparency Rating from Candid (formerly

 GuideStar), the world’s largest source of information on nonprofit organizations. This rating puts YOPN among the top 1% of tax-exempt organizations registered with the IRS which have earned a Gold Candid Seal of Transparency.

The Gold Seal of Transparency is a symbol of nonprofit transparency, accountability, and inclusivity. Organizations must share financial details and information about their leadership as well as demonstrate adherence to industry best practices for ensuring philanthropic dollars are spent responsibly and efficiently.

“Today, more than ever, transparency is critical to earning donor trust,” says YOPN Founder Anna Grill.  “Achieving this rating demonstrates to both funders and our members YOPN’s commitment to openly sharing information about our organization’s mission, goals, operations, and achievements to ensure those with Young Onset Parkinson’s Disease (YOPD) have the holistic support they need to live well and thrive far beyond their diagnosis.”

YOPN has established itself as a critical resource for people living with YOPD and their care partners. Individuals with YOPD are diagnosed during the most productive years of their lives, live longer with the disease, and are at increased risk for non-motor symptoms of Parkinson’s Disease. The organization partners with leading industry experts as well as other Parkinson’s related organizations and quickly has become the first stop for all things YOPD.

Earning the Gold Seal of Transparency gives YOPN donors, foundations, and other supporters the confidence that their contributions are being used to foster increased well-being and support for those living with or caring for someone with YOPD.

Potential donors can learn more about YOPN through the organization’s Candid profile.

About Young Onset Parkinson’s Network (YOPN)

Young Onset Parkinson’s Network is a nonprofit, 501(c)(3) educational and charitable organization for those diagnosed with Young Onset Parkinson’s Disease (YOPD) as well as the individuals related to and/or caring for those with the disease. The organization seeks to increase awareness of YOPD by providing information, resources, and services to help members strengthen their mind and body within a supportive community. Through its network, YOPN members have the holistic support needed not only to manage, but to thrive with this unexpected, early diagnosis. To learn more, visit www.yopnetwork.org.

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Vienna, Va., August 5, 2022 – Young Onset Parkinson’s Network (YOPN) announced today a new sponsorship agreement with Supernus Pharmaceuticals. This sponsorship will provide financial support for key programming and resource opportunities for the young onset Parkinson’s population. YOPN is the only member-based organization exclusively focused on supporting the needs of the Young Onset Parkinson’s Disease (YOPD) community.

YOPN relies on the generosity of donors and sponsors to maintain a no-cost membership for our members. With the support of Supernus, we will be able to continue to add new programs and resources that help our members live well and thrive.

Supernus Pharmaceuticals is a biopharmaceutical company focused on developing and commercializing products for the treatment of central nervous system (CNS) diseases, including treatments for dyskinesia in Parkinson’s patients receiving levodopa-based therapy.

This initial sponsorship will help support YOPN’s speaker series, including an upcoming educational event on “Managing OFF Episodes in Parkinson’s Disease (PD)” with Dr. Mindy Bixby, Movement Disorder Specialist at Hoag Hospital in Laguna Beach, California. The sponsorship also will provide funding for the YOPN bi-monthly Podcast Series:  Living Well Starts Here^SM  as well as upcoming membership discussions around the specific challenges facing those with YOPD.

About Supernus Pharmaceuticals, Inc.

Supernus Pharmaceuticals is a biopharmaceutical company focused on developing and commercializing products for the treatment of central nervous system (CNS) diseases.  Our diverse neuroscience portfolio includes approved treatments for epilepsy, migraine, ADHD, hypomobility in PD, cervical dystonia, chronic sialorrhea, dyskinesia in PD patients receiving levodopa-based therapy, and drug-induced extrapyramidal reactions in adult patients. We are developing a broad range of novel CNS product candidates including new potential treatments for hypomobility in PD, epilepsy, depression, and other CNS disorders. For more information, please visit www.supernus.com.

About Young Onset Parkinson’s Network (YOPN)

Young Onset Parkinson’s Network is a nonprofit, 501(c)(3) educational and charitable organization for those diagnosed with Young Onset Parkinson’s Disease (YOPD) as well as the individuals related to and/or caring for those with the disease. The organization seeks to increase awareness of YOPD by providing information, resources, and services to help members strengthen their mind and body within a supportive community. Through its network, YOPN members have the holistic support needed not only to manage, but to thrive with this unexpected, early diagnosis. To learn more, visit www.yopnetwork.org.

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PRESS RELEASE - Young Onset Parkinson’s Network Awarded Community Grant from the  Parkinson’s Foundation for the Third Consecutive Year

Vienna, Va., July 27, 2022 – Young Onset Parkinson’s Network (YOPN), the only member-based organization exclusively focused on supporting the needs of the Young Onset Parkinson’s Disease (YOPD) community, announced today that it has been awarded a Community Grant from the Parkinson’s Foundation for the third consecutive year.

 YOPN received $16,000 for new programming that aligns with the Foundation’s 2022 grant cycle focus: exercise/movement classes (specifically designed for the young onset PD population), programs/resources to support the newly diagnosed, as well as creating awareness and providing support for the intersection of mental health and YOPD.

 YOPN is honored to once again receive support from the Parkinson’s Foundation. YOPN has grown exponentially since our inception in 2020. This grant will allow us to expand our programming for members, addressing the unique challenges faced by those who receive this early diagnosis and are living with YOPD.

 YOPN’s 2022 Community Grant will be used to develop new programming designed to educate and assist members who have been newly diagnosed with YOPD. Programming includes educational videos, a peer mentoring program, and access to a tele-care coordinator to help those struggling with their diagnosis navigate available resources.

About Young Onset Parkinson’s Network (YOPN)

Young Onset Parkinson’s Network is a nonprofit, 501(c)(3) educational and charitable organization for those diagnosed with Young Onset Parkinson’s Disease (YOPD) as well as the individuals related to and/or caring for those with the disease. The organization seeks to increase awareness of YOPD by providing information, resources, and services to help members strengthen their mind and body within a supportive community. Through its network, YOPN members have the holistic support needed not only to manage, but to thrive with this unexpected, early diagnosis. To learn more, visit www.yopnetwork.org.

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Cardinal Hill Swim Team Swim Cap Fundraiser to Benefit YOPN

YOPN is honored to be selected as the recipient of a special service and fundraising project led by Courtney Watts, swimmer and assistant coach of the Cardinal Hill Swim Team in Fairfax, Virginia.  Sparked by the tenacity and strength she saw in her swim coach’s wife, Watts initiated a special swim cap fundraiser to benefit YOPN. In addition to hosting YOPN Founder Anna Grill to talk about the disease and what it’s like living with YOPD, Watts designed a swim cap to represent both Cardinal Hill and YOPN – a silicone navy blue cap adorned with YOPN’s gold logo, with a touch of cardinal flair. Throughout the season at different events the team will be accepting donations (minimum of $15) for the Young Onset Parkinson’s Network. Those who donate will receive a cap they can wear with pride!  A special thanks to Courtney Watts for leading this amazing effort. We hope it will spark others to help raise awareness for YOPD and the Young Onset Parkinson’s Network.

IN ACTION - YOPN to participate in the 2022 First Coast Parkinson's Run on April 30, 2022 in Jacksonville, Florida

YOPN is excited to be part of the upcoming 2022 First Coast Parkinson's Run on Saturday, April 30,2022 at Riverside Park, Jacksonville, Florida. The run was established to raise funds in support of providing resources to patients, care partners, and support groups to ensure a better quality of life for those diagnosed with Parkinson’s. YOPN will be on site to raise awareness for YOPD, sharing information about what resources are available for this segment of the population. For information and to join the run visit www.firstcoastparkinsonsrun.com.

YOPN Board Chair, Jennifer Otero will be onsite and YOPN will have a table at the run. If you’re interested in YOPN or are a member in the area, please consider joining us. It’s a great opportunity to meet and connect with fellow YOPN members and to raise awareness for the unique challenges associated with YOPD.

YOPN Launches New Website and Membership Portal on March 1, 2022

The Young Onset Parkinson’s Network (YOPN) announced to today the launch of its new website  (www.yopnetwork.org) and membership portal. The new website focuses on increasing awareness for YOPN offers those diagnosed with Young Onset Parkinson’s Disease (YOPD) and their loved ones an all-inclusive network for education, programming and resources dedicated specifically to the challenges associated with YOPD. The new website focuses on increasing awareness of YOPD and providing access and connections for this historically underserved population. Through membership individuals have the opportunity to be part of a safe, supportive, and vibrant community where they can acknowledge the implications of their diagnosis, share and learn from other members, and explore their path forward for a fulfilling life beyond the disease.

Young Onset Parkinson’s Network is a nonprofit, 501(c)(3) educational and charitable organization. The cost of membership is free, offset by the generosity of the organization’s sponsors, including a grant from the Parkinson’s Foundation. Through YOPN, members have the holistic support needed not only to manage, but to thrive and live well beyond this unexpected, early diagnosis.

 

IN ACTION - YOPN Founder Anna Grill shares her story with Wisconsin Parkinson’s Association

As part of a virtual program hosted by the Wisconsin Parkinson’s Association, YOPN Founder Anna Grill spoke over Zoom to a group of 25 individuals to talk about the experience of “OFF” episodes, the impact of experiencing dyskinesia on daily living, as well as how her treatment plan has helped her manage through these experiences.