News

See what’s new with the Young Onset Parkinson’s Network!

<< First  < Prev   1   2   Next >  Last >> 
  • 08/15/2022 10:08 AM | Anonymous

    Vienna, Va., August 5, 2022 – Young Onset Parkinson’s Network (YOPN) announced today a new sponsorship agreement with Supernus Pharmaceuticals. This sponsorship will provide financial support for key programming and resource opportunities for the young onset Parkinson’s population. YOPN is the only member-based organization exclusively focused on supporting the needs of the Young Onset Parkinson’s Disease (YOPD) community.

    “We rely on the generosity of donors and sponsors to maintain a no-cost membership for our members,” notes YOPN Founder an Anna Grill. “With the support of Supernus, we will be able to continue to add new programs and resources that help our members live well and thrive.”

    Supernus Pharmaceuticals is a biopharmaceutical company focused on developing and commercializing products for the treatment of central nervous system (CNS) diseases, including treatments for dyskinesia in Parkinson’s patients receiving levodopa-based therapy.

    This initial sponsorship will help support YOPN’s speaker series, including an upcoming educational event on “Managing OFF Episodes in Parkinson’s Disease (PD)” with Dr. Mindy Bixby, Movement Disorder Specialist at Hoag Hospital in Laguna Beach, California. The sponsorship also will provide funding for the YOPN bi-monthly Podcast Series:  Living Well Starts HereSM  as well as upcoming membership discussions around the specific challenges facing those with YOPD.

    About Supernus Pharmaceuticals, Inc.

    Supernus Pharmaceuticals is a biopharmaceutical company focused on developing and commercializing products for the treatment of central nervous system (CNS) diseases.  Our diverse neuroscience portfolio includes approved treatments for epilepsy, migraine, ADHD, hypomobility in PD, cervical dystonia, chronic sialorrhea, dyskinesia in PD patients receiving levodopa-based therapy, and drug-induced extrapyramidal reactions in adult patients. We are developing a broad range of novel CNS product candidates including new potential treatments for hypomobility in PD, epilepsy, depression, and other CNS disorders. For more information, please visit www.supernus.com.

    About Young Onset Parkinson’s Network (YOPN)

    Young Onset Parkinson’s Network is a nonprofit, 501(c)(3) educational and charitable organization for those diagnosed with Young Onset Parkinson’s Disease (YOPD) as well as the individuals related to and/or caring for those with the disease. The organization seeks to increase awareness of YOPD by providing information, resources, and services to help members strengthen their mind and body within a supportive community. Through its network, YOPN members have the holistic support needed not only to manage, but to thrive with this unexpected, early diagnosis. To learn more, visit www.yopnetwork.org.

    ###

  • 07/27/2022 8:53 AM | Anonymous

    PRESS RELEASE - Young Onset Parkinson’s Network Awarded Community Grant from the  Parkinson’s Foundation for the Third Consecutive Year

    Vienna, Va., July 27, 2022 – Young Onset Parkinson’s Network (YOPN), the only member-based organization exclusively focused on supporting the needs of the Young Onset Parkinson’s Disease (YOPD) community, announced today that it has been awarded a Community Grant from the Parkinson’s Foundation for the third consecutive year.

     YOPN received $16,000 for new programming that aligns with the Foundation’s 2022 grant cycle focus: exercise/movement classes (specifically designed for the young onset PD population), programs/resources to support the newly diagnosed, as well as creating awareness and providing support for the intersection of mental health and YOPD.

     “We are honored to once again receive support from the Parkinson’s Foundation,” notes YOPN Founder an Anna Grill. “We have grown exponentially since our inception in 2020. This grant will allow us to expand our programming for members, addressing the unique challenges faced by those who receive this early diagnosis and are living with YOPD.”

     YOPN’s 2022 Community Grant will be used to develop new programming designed to educate and assist members who have been newly diagnosed with YOPD. Programming includes educational videos, a peer mentoring program, and access to a tele-care coordinator to help those struggling with their diagnosis navigate available resources.

    About Young Onset Parkinson’s Network (YOPN)

    Young Onset Parkinson’s Network is a nonprofit, 501(c)(3) educational and charitable organization for those diagnosed with Young Onset Parkinson’s Disease (YOPD) as well as the individuals related to and/or caring for those with the disease. The organization seeks to increase awareness of YOPD by providing information, resources, and services to help members strengthen their mind and body within a supportive community. Through its network, YOPN members have the holistic support needed not only to manage, but to thrive with this unexpected, early diagnosis. To learn more, visit www.yopnetwork.org.

     ###

  • 06/24/2022 11:39 AM | Anonymous

    Cardinal Hill Swim Team Swim Cap Fundraiser to Benefit YOPN

    YOPN is honored to be selected as the recipient of a special service and fundraising project led by Courtney Watts, swimmer and assistant coach of the Cardinal Hill Swim Team in Fairfax, Virginia.  Sparked by the tenacity and strength she saw in her swim coach’s wife, Watts initiated a special swim cap fundraiser to benefit YOPN. In addition to hosting YOPN Founder Anna Grill to talk about the disease and what it’s like living with YOPD, Watts designed a swim cap to represent both Cardinal Hill and YOPN – a silicone navy blue cap adorned with YOPN’s gold logo, with a touch of cardinal flair. Throughout the season at different events the team will be accepting donations (minimum of $15) for the Young Onset Parkinson’s Network. Those who donate will receive a cap they can wear with pride!  A special thanks to Courtney Watts for leading this amazing effort. We hope it will spark others to help raise awareness for YOPD and the Young Onset Parkinson’s Network.

  • 06/22/2022 12:00 PM | Anonymous

    YOPN Represented at the Parkinson’s Foundation Volunteer Summit Northeast

    On June 23 and 24, YOPN  Founder Anna Grill will be representing YOPN in New York City for two days of educational and networking sessions focusing on making a difference as a volunteer. Not only is this a great opportunity for connecting with other active volunteers, but it also is a chance to raise awareness and introduce those with YOPD to Young Onset Parkinson’s Network. Are you a member who is attending?  Let us know so fellow YOPN members can connect during the event!

  • 06/21/2022 9:00 AM | Anonymous

    IN ACTION - YOPN Founder Anna Grill to Speak at Women’s World of Boxing in NYC

    Live in New York City on Wednesday, June 22, YOPN Founder Anna Grill will be speaking on understanding OFF episodes and dyskinesia in Parkinson’s Disease  and how it affects patients’ daily lives. The event is being held at the Women’s World of Boxing (2147 2nd Avenue in New York City) at 12:00pm EST.

  • 06/15/2022 11:30 AM | Anonymous

    IN ACTION - YOPN Participates in Parkinson's Revolution DC

    On Saturday, June 11, 2022, YOPN Founder Anna Grill joined the DC team and hundreds of others across the country for two high-energy, 45-minute rides to raise money and awareness for the Parkinson’s Foundation.  Held at the CycleBar in Arlington, VA, Anna helped kick off both sessions by sharing her story and her journey to create Young Onset Parkinson’s Network.  Together the team of more than 40 riders raised over $13,000!

  • 03/28/2022 12:00 PM | Anonymous
    IN ACTION - YOPN to participate in the 2022 First Coast Parkinson's Run on April 30, 2022 in Jacksonville, Florida

    YOPN is excited to be part of the upcoming 2022 First Coast Parkinson's Run on Saturday, April 30,2022 at Riverside Park, Jacksonville, Florida. The run was established to raise funds in support of providing resources to patients, care partners, and support groups to ensure a better quality of life for those diagnosed with Parkinson’s. YOPN will be on site to raise awareness for YOPD, sharing information about what resources are available for this segment of the population. For information and to join the run visit www.firstcoastparkinsonsrun.com.

    YOPN Board Chair, Jennifer Otero, and YOPN Founder Anna Grill will be onsite. YOPN will have a table at the run. If you’re interested in YOPN or are a member in the area, please consider joining us. It’s a great opportunity to meet and connect with fellow YOPN members and to raise awareness for the unique challenges associated with YOPD.

  • 03/18/2022 11:00 AM | Anonymous

    IN ACTION - Indiana Parkinson's Association Welcomes YOPN's Anna Grill as Guest Speaker

    YOPN Founder Anna Grill traveled to Carmel, Indiana last week to share her story and experiences living with YOPD. Sharing the stage with neurologist Michael Rezak, MD, PhD, Anna spoke to a group of 40 individuals about her experience being diagnosed with YOPD as well as the ups and downs associated with her symptoms, sharing how her treatment plan over the past 14 years has helped her manage the disease and live a fulfilling life

  • 03/01/2022 9:00 AM | Anonymous

    YOPN Launches New Website and Membership Portal on March 1, 2022

    The Young Onset Parkinson’s Network (YOPN) announced to today the launch of its new website  (www.yopnetwork.org) and membership portal. The new website focuses on increasing awareness for YOPN offers those diagnosed with Young Onset Parkinson’s Disease (YOPD) and their loved ones an all-inclusive network for education, programming and resources dedicated specifically to the challenges associated with YOPD. The new website focuses on increasing awareness of YOPD and providing access and connections for this historically underserved population. Through membership individuals have the opportunity to be part of a safe, supportive, and vibrant community where they can acknowledge the implications of their diagnosis, share and learn from other members, and explore their path forward for a fulfilling life beyond the disease.

    Young Onset Parkinson’s Network is a nonprofit, 501(c)(3) educational and charitable organization. The cost of membership is free, offset by the generosity of the organization’s sponsors, including a grant from the Parkinson’s Foundation. Through YOPN, members have the holistic support needed not only to manage, but to thrive and live well beyond this unexpected, early diagnosis.

     

  • 01/19/2022 9:00 AM | Anonymous

    IN ACTION - YOPN Founder Anna Grill shares her story with Wisconsin Parkinson’s Association

    As part of a virtual program hosted by the Wisconsin Parkinson’s Association, YOPN Founder Anna Grill spoke over Zoom to a group of 25 individuals to talk about the experience of “OFF” episodes, the impact of experiencing dyskinesia on daily living, as well as how her treatment plan has helped her manage through these experiences.

     

<< First  < Prev   1   2   Next >  Last >> 

© 2021-2022 Young Onset Parkinson’s Network.
All rights reserved.

Young Onset Parkinson’s Network is sponsored in part by a grant from the Parkinson’s Foundation.


Powered by Wild Apricot Membership Software