News

See what’s new with the Young Onset Parkinson’s Network!

  • 06/24/2022 11:39 AM | Anonymous

    YOPN is honored to be selected as the recipient of a special service and fundraising project led by Courtney Watts, swimmer and assistant coach of the Cardinal Hill Swim Team in Fairfax, Virginia.  Sparked by the tenacity and strength she saw in her swim coach’s wife, Watts initiated a special swim cap fundraiser to benefit YOPN. In addition to hosting YOPN Founder Anna Grill to talk about the disease and what it’s like living with YOPD, Watts designed a swim cap to represent both Cardinal Hill and YOPN – a silicone navy blue cap adorned with YOPN’s gold logo, with a touch of cardinal flair. Throughout the season at different events the team will be accepting donations (minimum of $15) for the Young Onset Parkinson’s Network. Those who donate will receive a cap they can wear with pride!  A special thanks to Courtney Watts for leading this amazing effort. We hope it will spark others to help raise awareness for YOPD and the Young Onset Parkinson’s Network.

  • 06/22/2022 12:00 PM | Anonymous

    On June 23 and 24, YOPN  Founder Anna Grill will be representing YOPN in New York City for two days of educational and networking sessions focusing on making a difference as a volunteer. Not only is this a great opportunity for connecting with other active volunteers, but it also is a chance to raise awareness and introduce those with YOPD to Young Onset Parkinson’s Network. Are you a member who is attending?  Let us know so fellow YOPN members can connect during the event!

  • 06/21/2022 9:00 AM | Anonymous

    Live in New York City on Wednesday, June 22, YOPN Founder Anna Grill will be speaking on understanding OFF episodes and dyskinesia in Parkinson’s Disease  and how it affects patients’ daily lives. The event is being held at the Women’s World of Boxing (2147 2nd Avenue in New York City) at 12:00pm EST.

  • 06/15/2022 11:30 AM | Anonymous

    On Saturday, June 11, 2022, YOPN Founder Anna Grill joined the DC team and hundreds of others across the country for two high-energy, 45-minute rides to raise money and awareness for the Parkinson’s Foundation.  Held at the CycleBar in Arlington, VA, Anna helped kick off both sessions by sharing her story and her journey to create Young Onset Parkinson’s Network.  Together the team of more than 40 riders raised over $13,000!

  • 03/28/2022 12:00 PM | Anonymous
    IN ACTION - YOPN to participate in the 2022 First Coast Parkinson's Run on April 30, 2022 in Jacksonville, Florida

    YOPN is excited to be part of the upcoming 2022 First Coast Parkinson's Run on Saturday, April 30,2022 at Riverside Park, Jacksonville, Florida. The run was established to raise funds in support of providing resources to patients, care partners, and support groups to ensure a better quality of life for those diagnosed with Parkinson’s. YOPN will be on site to raise awareness for YOPD, sharing information about what resources are available for this segment of the population. For information and to join the run visit www.firstcoastparkinsonsrun.com.

    YOPN Board Chair, Jennifer Otero, and YOPN Founder Anna Grill will be onsite. YOPN will have a table at the run. If you’re interested in YOPN or are a member in the area, please consider joining us. It’s a great opportunity to meet and connect with fellow YOPN members and to raise awareness for the unique challenges associated with YOPD.

  • 03/18/2022 11:00 AM | Anonymous

    IN ACTION - Indiana Parkinson's Association Welcomes YOPN's Anna Grill as Guest Speaker

    YOPN Founder Anna Grill traveled to Carmel, Indiana last week to share her story and experiences living with YOPD. Sharing the stage with neurologist Michael Rezak, MD, PhD, Anna spoke to a group of 40 individuals about her experience being diagnosed with YOPD as well as the ups and downs associated with her symptoms, sharing how her treatment plan over the past 14 years has helped her manage the disease and live a fulfilling life

  • 03/01/2022 9:00 AM | Anonymous

    YOPN Launches New Website and Membership Portal on March 1, 2022

    The Young Onset Parkinson’s Network (YOPN) announced to today the launch of its new website  (www.yopnetwork.org) and membership portal. The new website focuses on increasing awareness for YOPN offers those diagnosed with Young Onset Parkinson’s Disease (YOPD) and their loved ones an all-inclusive network for education, programming and resources dedicated specifically to the challenges associated with YOPD. The new website focuses on increasing awareness of YOPD and providing access and connections for this historically underserved population. Through membership individuals have the opportunity to be part of a safe, supportive, and vibrant community where they can acknowledge the implications of their diagnosis, share and learn from other members, and explore their path forward for a fulfilling life beyond the disease.

    Young Onset Parkinson’s Network is a nonprofit, 501(c)(3) educational and charitable organization. The cost of membership is free, offset by the generosity of the organization’s sponsors, including a grant from the Parkinson’s Foundation. Through YOPN, members have the holistic support needed not only to manage, but to thrive and live well beyond this unexpected, early diagnosis.

     

  • 01/19/2022 9:00 AM | Anonymous

    IN ACTION - YOPN Founder Anna Grill shares her story with Wisconsin Parkinson’s Association

    As part of a virtual program hosted by the Wisconsin Parkinson’s Association, YOPN Founder Anna Grill spoke over Zoom to a group of 25 individuals to talk about the experience of “OFF” episodes, the impact of experiencing dyskinesia on daily living, as well as how her treatment plan has helped her manage through these experiences.

     

  • 07/22/2021 5:25 PM | Anonymous

    PRESS RELEASE - Parkinson’s Foundation Grants More Than $2.2 Million to Local Communities for Parkinson’s Programs
    Young Onset Parkinson’s Network Awarded $23,000 to Support Programming

    The Parkinson’s Foundation today announced the recipients of more than $2.2 million in community grants for Parkinson’s programs across the country. Community grants support local health, wellness and educational programs that address unmet needs in the Parkinson’s disease (PD) community. Young Onset Parkinson’s Network (YOPN) was awarded $23,000 to support the development of programs and resources specifically designed to help the YOPD community. Full press release here.

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Young Onset Parkinson’s Network is sponsored in part by a grant from the Parkinson’s Foundation.


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