by Karen Patterson

I can not remember, I can not recall

So many names, I can’t remember at all

Like sand slipping through my fingers

While other memories tend to linger

When I wish to bring back facts

Stress triggers my mind to pull back

Making it so I can’t remember at all

Through mental cracks names do fall

Be it the names of people, places, books, or movies — I have the hardest time remembering them. I’m not sure if it’s a byproduct of Parkinson’s disease, aging, or something else. It’s been an ongoing issue that seems to get worse as I get older.

Stress and trauma make it even harder. I’ll be going about my life, minding my own business, happily working on one project — or ten. Then, if a particularly stressful event or piece of news comes my way, or even just an unexpected circumstance rattles my nerves, whatever I was thinking or doing before is gone. Poof! Erased completely, until I’ve had time to process the new information.

For years, I’ve referred to this as the “three-hour to three-day delay” in my thought process.

Dosage anxiety times are the hardest for me to stay focused The period of about an hour before to an hour after I take my carbidopa/levodopa. Too often, this is also when I have the most difficulty processing and retaining information. If I’m stressed out, it’s even worse. Even a well-planned joke can fly right over my head. The solution or correct response to a situation often doesn’t come to me until three hours — or even three days — later. A little too late for jokes to land or for insights to make their mark. I end up chuckling alone in frustration for missing the boat.

Helping Cognitive Decline

The lessons I’ve learned in Jam for Joy and the Work and Wellness improvisation classes have helped my cognitive decline immensely. I don’t miss nearly as much. And the life lessons I’ve gained in Robert Cochrane’s Cinema Therapy classes have helped me see these off-moments as learning opportunities, rather than failures.

Still, there are times when I’ve found myself in those treasured classes too close to pill time, caught in a cognitive fog — struggling to keep up with even the simplest instructions or games. It happens if I have to take a pill in the middle of class. I try not to, but as we all know, our brains need that daily dose of dopamine. And unfortunately, our symptoms don’t care whether it’s a convenient time or not.

There are No Wrong Answers

That’s why it’s so great that, within these classes, there are no wrong answers. We help each other and play through whatever challenges we’re facing in the moment.

As we age, we are all susceptible to some form of cognitive decline. It’s a scary, sad truth we must all face and learn to navigate. There’s no quick fix to prevent it. Keeping our minds active and engaged — along with proper diet and exercise — definitely helps. But still, we must be prepared. Yes, and we need to watch out for one another. It amplifies the importance of having a supportive team — people who are ready to catch us when our minds start to slip.

Regarding my own cognitive decline, I have doctors in two different states who are amazed by how much my involvement in Cinema Therapy has improved my symptoms — especially my memory and ability to think my way through stress.

Make no mistake, I still struggle. Sometimes I can’t remember the simplest things — like which direction to turn the shower knob for hot or cold water. But overall, my thinking has improved so much that my neurologist and I recently discussed the possibility of reducing my medication.

Yes, and

Yes, and — those two magic words — help me roll with the brain fog and even laugh through it. They teach me how to celebrate failing big. No matter how many times I flip the wrong light switch or can't find something hiding in plain sight, I remind myself: it’s all part of getting older. Just like the gray hair, it happens to all of us — with or without Parkinson’s.

by Beatrice Zatorska, Founder and CEO of PD Buddy App

When people talk about Parkinson’s, the focus often falls on movement. The tremors, the shuffles, the stiffness. But the brain, marvelous machine that it is, has more to do than just keep you walking in a straight line. Memory, problem-solving, concentration, quick thinking, decision-making – all these live upstairs in the mental control room. And like muscles, they need training if you want them to stay strong.

There’s good news here. Research suggests that keeping the brain busy is one of the best ways to fight off cognitive decline. Think of it like this: your neurons love a challenge. When you solve puzzles, when you learn something new, or when you dive into a tricky crossword, you’re actually building stronger connections in the brain. Scientists call this “cognitive reserve,” which is basically your brain’s back-up plan. The more reserve you build, the more resilient your mind becomes against the wear and tear of conditions like Parkinson’s.

So what does this look like in real life?

It doesn’t mean enrolling in a PhD in astrophysics, unless that happens to be your thing. It’s about keeping your brain active in ways that are fun, regular, and just a little bit demanding. Studies show that people who stay mentally and socially active often keep their thinking skills sharper for longer. There’s even evidence that those who continue working, especially in jobs that require problem-solving or learning new skills, tend to maintain better cognitive health than those who stop. It turns out your boss may be doing your brain a favour, whether you like it or not.

Mental Exercise is Key

If you want to give your neurons a proper workout, there are endless options. Old school is still gold: crosswords, Sudoku, logic puzzles, and brain teasers all keep your mental gears turning. If you prefer something more digital, apps like Lumosity, Peak, and Elevate offer games designed to sharpen memory, speed, and attention. These tools don’t replace real-life activities, but they can be a handy way to sneak in ten or fifteen minutes of brain exercise between the morning coffee and the daily scroll. Think of it as a quick gym session for your mind.

How much is enough?

Scientists don’t prescribe a rigid formula, but the general idea is “little and often.” Ten to twenty minutes a day of focused cognitive activity can be surprisingly powerful. It’s like brushing your teeth. You wouldn’t skip it for a week and then try to make up for it all in one go. The brain prefers regular stimulation. Pair that with things like reading, learning a new skill, or even taking up a musical instrument, and you’re giving your grey matter a gourmet buffet of challenges.

And let’s not forget the lifestyle extras. Physical exercise boosts blood flow to the brain and releases chemicals that support memory and mood. A decent diet full of colourful fruit, vegetables, omega-3s, and whole grains fuels the brain’s machinery. Some people swear by supplements such as omega-3, vitamin D, and CoQ10, though the evidence is mixed and you’ll want to have a word with your doctor before adding anything new to your regime. Sleep is another underrated hero: it’s during deep rest that your brain clears out toxins and files away memories. Cut corners on sleep and you’re robbing your mind of vital maintenance time.

Social life counts too.

Chatting with friends, debating the news, or laughing at bad jokes all push your brain into action. Human connection demands quick thinking, empathy, memory recall, and language all at once. In other words, a dinner with mates can be just as valuable to your cognitive health as half an hour of Sudoku.

Cognitive wellness isn’t about being a genius. It’s about giving your brain the conditions it needs to stay lively, alert, and adaptable.

Parkinson’s may try to slow things down, but you have tools at your disposal to keep your mind moving forward. So set yourself a challenge today. Pick up that crossword, download a brain game app, learn a few words in Italian, or finally tackle that piano in the corner. Your brain will thank you – and who knows, you might even surprise yourself.

If you’re living with Parkinson’s, especially if you were diagnosed young, you’ve probably noticed something creeping into your life alongside the symptoms: a relentless, exhausting drip-feed of costs. Not just medical bills, but the hidden ones too: the therapy sessions, the missed work, the tools, the classes, the things insurance doesn’t quite cover.

No one sends you an invoice that says “This is what Parkinson’s is going to cost you this year,” but let’s not pretend it’s cheap. So let’s break the silence and talk numbers.

The medications that keep you going

At first, it seems manageable. Levodopa, your most likely starting point is available as a generic, and a month's supply might only set you back $10 to $50 with insurance. But few people stick to basic levodopa for long. Extended-release versions, which help smooth out the peaks and troughs, can cost anywhere from $200 to $600 a month. Add in dopamine agonists like pramipexole or ropinirole, which come in around $100 to $500 a month, and MAO-B inhibitors, another $100 to $300, and suddenly you're easily spending $300 to $800 every month on medication alone. That’s around $4,000 to $10,000 a year, even with a halfway decent insurance plan.

Then, of course, there are the meds for side effects: amantadine for dyskinesia, stool softeners for constipation, anti-anxiety meds, sleep aids. Parkinson’s rarely travels light.

The cost of being monitored

Living with PD means regular appointments, often every three to six months with a neurologist or movement disorder specialist. Copays for these visits might be $40 to $100 if you’re lucky. But if your specialist is out-of-network, that could easily climb to $300 or more per visit. Add in the occasional MRI or DaTscan, anywhere from $1,000 to $5,000 a pop and the annual tally for routine care can quietly land between $2,000 and $5,000, depending on how stable things are.

Even if you’re well-insured, there are always extras: lab tests to check for vitamin deficiencies, private second opinions when things don’t feel right, and unexpected follow-ups after medication changes.

Therapy: essential, utterly expensive

Let’s be honest, therapy is where a lot of your money vanishes. Physical therapy, occupational therapy, speech therapy: they’re all vital for keeping you moving, functioning, and communicating well. And they’re not one-off interventions. They’re ongoing.

A single session can cost $100 to $300. Many people aim for weekly sessions across at least two disciplines, especially during flare-ups or when something shifts. Even with insurance that covers part of the cost, many people end up paying for extra sessions out of pocket. Over a year, it’s not unusual to spend $5,000 to $10,000 just to keep your body from betraying you faster than it needs to.

The worst part? You often don’t know how many sessions insurance will cover until you hit the limit.

Therapy for your mind, not a luxury

Depression, anxiety, and executive dysfunction aren’t fringe issues with Parkinson’s. They’re center stage. Regular mental health support is as critical as any medication. But access is patchy, and good therapists aren’t cheap.

Counselling or cognitive behavioral therapy typically costs $150 to $250 per session. If you're seeing someone even twice a month, that's $3,600 to $6,000 per year. And if you’re paying out of pocket, because your insurance doesn’t consider mental health “essential” enough? Well, welcome to the club.

You might turn to a coach instead, a health or life coach with Parkinson’s expertise, which might come in slightly cheaper at $75 to $150 per session. But it's still a real line item in your budget.

The price of staying strong

Everyone tells you to exercise like your life depends on it because, frankly, it does. Regular physical activity is the only intervention proven to slow progression. But staying active doesn’t come free.

Parkinson’s specific classes like Rock Steady Boxing or neurophysiotherapy can cost $100 to $200 per month. A personal trainer who understands Parkinson’s? Closer to $80 to $200 an hour. Add in gym memberships, yoga classes, tai chi, or specialist dance classes, and you could be looking at $1,500 to $3,000 a year, even if you’re thrifty.

There’s also equipment to think about: free weights, resistance bands, yoga mats, or even balance aids. All of it adds up.

Devices, tools, and smart solutions

As symptoms evolve, many people turn to tools to make life smoother. These include walking aids, rollators, weighted utensils, adapted clothing, speech amplifiers, or phone apps and wearables to monitor symptoms.

An ergonomic chair or standing desk might run you $400. A smartwatch synced with your symptom tracker could cost another $250. And that’s before replacing any of it when it wears out.

You might not be buying all of this at once, but over a year, you’ll easily spend $500 to $2,000 just adapting your environment to match your needs.

The invisible whopper: lost income

This is the big one. The unspoken one. The one that doesn’t show up on any medical bill but hits the hardest.

Many people with Parkinson’s diagnosed in their 30s or 40s try to keep working. Some succeed. But often that means scaling back hours, avoiding certain roles, or accepting jobs that are easier physically but pay less. Others are eventually forced to stop altogether.

Research suggests that people with Parkinson’s lose an average of $25,000 a year in income. And that’s not including the retirement contributions they’re no longer making, the employer-provided insurance they’ve lost, or the career progression that simply vanishes.

If you stopped working 10 years earlier than planned, that could mean a quarter of a million dollars or more in lost earnings. And that loss affects not just your bank account, but your independence, identity, and long-term stability.

Adding it all up

So what does Parkinson’s really cost you, year after year?

If you’re managing symptoms with standard care, paying for therapy out of pocket, attending classes, seeing specialists, adapting your home, getting mental health support, and replacing lost wages with disability income (if you’re lucky enough to qualify), you could easily be looking at a total personal cost of $20,000 to $30,000 every single year.

And that’s a conservative estimate.

No one ever tells you that when you're diagnosed. But it’s the truth many people are quietly living with.

What can you do about it?

There’s no magic fix, but there are smart moves. Some people start planning early and exploring disability benefits before symptoms become obvious at work. Others find creative ways to stay in the workforce longer, like going remote, changing roles, or finding employers who are willing to be flexible.

If insurance denies something, appeal it again and again if needed. Many people succeed on the second or third try. Nonprofits like HealthWell Foundation, PAN Foundation, Parkinson’s Foundation, PMD Alliance, and Michael J. Fox Foundation sometimes offer grants or stipends to help with therapy costs or specialist access. And don't underestimate the power of local community groups, they’re often the first to know which resources are worth the effort.

You won’t be able to eliminate the financial cost of Parkinson’s, but you can navigate it better, and sometimes lighten the load through good information, strong support, and sheer persistence.

Sleep plays a vital role in our health, and for people with Parkinson’s disease, it becomes even more critical. One lesser-known, but very important, condition linked to both sleep and Parkinson’s is REM Sleep Behavior Disorder, or RBD. That’s why many neurologists routinely ask about sleep—it can be the window into early changes in the brain.

What Exactly Is REM Sleep Behavior Disorder?

Let’s start with the basics. REM (Rapid Eye Movement) is the sleep stage where dreaming occurs. During this phase, the brain typically sends signals to paralyze the muscles, stopping you from physically acting out your dreams.

But in REM Sleep Behavior Disorder, that protective mechanism fails. Instead of lying still, individuals with RBD may move, speak, shout, or even leap out of bed while dreaming—often reacting to vivid or action-filled dreams. This can be startling or even dangerous.

Common signs of RBD include:

• Sudden movements such as punching, kicking, or jumping from bed
• Vocal sounds like shouting, talking, or crying out
• A lack of awareness of these behaviors, making input from a bed partner especially helpful

RBD can be idiopathic (no known cause) or secondary to other factors like medications. For example, antidepressants such as mirtazapine have been shown to trigger RBD in some cases (Onofrj M, 2003).

The Link Between RBD and Parkinson’s Disease

Idiopathic RBD isn’t just a sleep disorder—it can be an early warning sign of neurological conditions. One large study found that 81% of elderly males with idiopathic RBD eventually developed Parkinson’s or related syndromes, with motor symptoms appearing on average 10 years after the initial RBD diagnosis (Jin H et al., 2017).

This makes RBD one of the most powerful early predictors of Parkinson’s, well before tremors or stiffness begin.

How Is RBD Diagnosed?

Diagnosis begins with a detailed history—often including your bed partner’s observations. If your doctor suspects RBD, they may refer you for a polysomnography (sleep study), which monitors your brain waves, muscle activity, and eye movements overnight. Some centers even record video during the study to capture dream-enactment behaviors. While usually done in a sleep clinic, some institutions may offer home-based testing.

What Are the Treatment Options?

Treatment depends on the underlying cause. If medications like mirtazapine or certain antidepressants are suspected triggers, your doctor may suggest changing them first.

When medical treatment is necessary, clonazepam and melatonin are commonly prescribed first-line options (Jiménez-Jiménez FJ, 2021). These medications help reduce the frequency and severity of dream-enactment behaviors. However, they must be used with care, especially in older adults or those with memory or balance issues.

Safety modifications are also essential:

• Lowering the bed height
• Removing sharp or hard objects from the room
• Placing cushions around the bed
• In some cases, sleeping in separate beds until symptoms are controlled

These practical changes can help prevent injury to both the patient and their partner.

What Should You Do if You Suspect RBD?

If you or someone close to you notices unusual movements during sleep, bring it up with your GP or neurologist. While RBD might sound straightforward, only a sleep specialist can confirm the diagnosis and distinguish it from other sleep disorders.

If diagnosed, it may also be worthwhile to see a movement disorder neurologist—a specialist who can monitor for early signs of Parkinson’s and guide future steps, including regular follow-ups.

While acting out dreams may seem like just an odd quirk of sleep, RBD can be a powerful clue into brain health. For some, it’s the first sign that something deeper may be going on. With early recognition and management, individuals can stay safer at night—and potentially catch neurological changes early, long before other symptoms appear.

References:

• Mayo Clinic. (2018). REM Sleep Behavior Disorder.
• Jin H, Zhang JR, Shen Y, Liu CF. (2017). Clinical significance of REM sleep behavior disorders and other non-motor symptoms of parkinsonism. Neurosci Bull, 33(5):576–584. doi: 10.1007/s12264-017-0164-8.
• Jiménez-Jiménez FJ, Alonso-Navarro H, García-Martín E, Agúndez JAG. (2021). Current Treatment Options for REM Sleep Behaviour Disorder. J Pers Med, 11(11):1204. doi: 10.3390/jpm11111204.
• Onofrj M, Luciano AL, Thomas A, et al. (2003). Mirtazapine induces REM sleep behavior disorder in parkinsonism. Neurology, 60(1):113-5. doi: 10.1212/01.wnl.0000042084.03066.c0.
• https://www.michaeljfox.org/news/ask-md-acting-out-dreams-and-parkinsons-disease

The emotional toll as a caregiver was devastating. I went through a variety of emotions. I was uncertain of what the future would bring for my mother, who was diagnosed with Parkinson’s Disease, and at the same time, I was unsure of my future in life as a caregiver or a life without my best friend and mother.  

My mother had PD for 15 years, but I was not aware until the seventh year when her symptoms became progressive and more difficult for her to hide from our family. I feel she may have tried to hide her diagnosis because she did not want to burden us which she would never have been the case. Or she may not have realized or been advised as to the progression, diagnoses or reality of the disease because even medical professionals seemed unsure as to the future due to her diagnosis.  

Even today, as an advocate for a PD cure, I find myself still having a difficult time reliving memories of my mother’s struggle. The final four years as her caregiver were the toughest for me as well. Feelings of anxiety, sadness, stress, depression, and hopelessness crept through my life, but I attempted to hide them from my mother, who I felt I needed only to show care and support during her struggles. I often say I would not be the man I am today without my mother’s sacrifices. She was a teacher with a master’s degree and gave up her career to raise my brother and me.  

I wouldn’t have accomplished most of my academic success and professional acknowledgments without having my mother cheer by my side, from the good times to the tougher ones. She was always right by my side, encouraging me 24/7. She was and always will be an inspiration, and at times, she sacrificed her health but did not share her PD diagnosis with me until several years later because she didn’t want to burden the family. Many days, I wish she had, and it makes me wonder if, at that time, I was unaware that something more could have been done to slow the progression.   

Every journey is unique and direct, but everyone inspires me daily to fight for a cure. Advocating helps me cope, and my mother lives on through everyone I meet; she shares our journey and allows me to never forget how important she was in this world and to me forever. My journey continues today, from being a caregiver to an advocate. I am still at a loss and in shock with feelings like what happened, why, and what, if anything, I could have done differently as PD progressed so quickly for my mother… we still do not know why.  

Out of my darkness and loss, though, comes some positives, like meeting so many today who are my heroes and warriors battling PD but who I fight side by side across the world to ensure no one is ever alone, and I never want anyone else to go through what my mother or my family has. I want nothing but a cure. Now. 

When it comes to Parkinson’s Disease, there's no silver bullet. But there is something surprisingly powerful, proven, and entirely within reach: exercise. No fluff, no hype — just solid science and real-world results.

Exercise Isn't Just Helpful — It's Essential

If exercise could be bottled into a pill, it would be the most prescribed treatment for Parkinson’s. That’s not just poetic — researchers are finding that regular physical activity may not only slow disease progression but might even improve symptoms and enhance brain health.

Professor Bas Bloem, a leading Dutch neurologist and one of the world’s top Parkinson’s experts, says exercise should be prescribed just like medication. Why? Because brain scans show something astonishing: after six months of regular exercise, people with Parkinson’s actually regrow dopamine transporters in the brain. These are the very systems that break down in Parkinson’s.

Tangible Benefits Backed by Research

Recent studies show that exercise:

• Improves balance, mobility, flexibility, and posture
  

• Enhances mood and mental clarity
  

• Strengthens muscles and bones
  

• Improves cardiovascular and lung function
  

• Reduces the risk of cognitive decline
  

• Might slow or even reverse some neurological damage
  

One Yale School of Medicine study found that intensive aerobic exercise may reverse neurodegeneration in Parkinson’s — something previously thought impossible. And there are over 130,000 articles on the topic and 137 active clinical trials exploring exercise and PD right now. This isn’t a fad — it’s a scientific movement.

What Kind of Exercise Works Best?

The best exercise is the one you’ll actually do. Research and patient experience suggest a mix of activities is ideal:

• Aerobic/Cardio (e.g. walking, cycling, cross-training): gets your heart pumping and improves stamina.
  

• Strength Training (e.g. weights or resistance bands): supports posture and everyday movement.
  

• Flexibility & Balance (e.g. yoga, Pilates, Tai Chi): enhances stability and helps prevent falls.
  

• Neuromotor Skills (e.g. dance, boxing, agility drills): boosts coordination and mental sharpness.
  

• Voice & Hand Exercises: often overlooked, but vital for communication and fine motor control.
  

Even “snack-sized” movement counts. Can't do an hour? Take the stairs. Do ten minutes here and there. It adds up.

Real Life: Michel’s Story

Michel, a member of the No Silver Bullet 4 PD community, exercises six days a week — and it shows. Diagnosed five years ago, he now hikes, strength-trains, cycles, and stretches. He's regained his handwriting with daily hand exercises. He uses voice training to maintain speech strength. His energy and symptom control have improved dramatically — and he credits consistency and variety.

What About Intensity?

Forget heart rate monitors — many people with PD can’t rely on them. Instead, follow the “pant and chat” rule: exercise hard enough that you're breathing heavier, but not so hard you can’t hold a conversation. Sweat is your friend.

And it helps to time your workouts for when your medication is working (your “on” time). Some people even slightly adjust their meds to ensure they can exercise effectively — always check with your doctor first.

But I’m Tired. Or Scared. Or Just Not Motivated.

You’re not alone. Fatigue, apathy, time, and fear of falling are real barriers. But here’s how people are pushing through:

• Use a trainer or physiotherapist — especially early on to build confidence.
  

• Exercise with a buddy — it’s more fun and keeps you accountable.
  

• Track your progress — apps like PD Buddy let you journal your routine, earn badges, and stay connected.
  

• Reward yourself — Michel swears by a long bath after training.
  
  

And if you're worried about falls, try stationary cycling. Four points of contact (hands and feet) make it safer than walking.

You don’t need to be an athlete to fight back against Parkinson’s — you just need to move. Consistently. Purposefully. And with hope.

If there were a pill with the same benefits as exercise, we’d all be lining up to get it. The good news? It already exists. It’s called movement — and it’s free.

So lace up. Plug in your favorite playlist. And start today — even five minutes is better than nothing.

It’s summertime, and at long last, I’ve found a physical therapist who understands Parkinson’s disease. Another first for me. While It’s work, I accept and appreciate the challenge. The warm weather this time of year is beneficial in many ways, as is having proper guidance for the first time in nearly five years. 

It’s been a lifelong journey discovering my workout routine. Using an exercise ball and different zoom videos has helped me stay active. I’m always interested in meeting new physical therapists. Each has their style or approach to various problem areas. 

When I discover a new stretch or routine that works well. I do my best to remember it and add it to the long list of ‘hacks' I use in the evenings when my dopamine levels aren’t playing nicely. Evenings I spend with distorting leg cramps, twisting my tendons tighter than wrung-out dish rags. On those nights, I reflect on the day’s water intake. Yes, and my exercise ball becomes my best friend. At least until my meds kick in and allow me to sleep. Sometimes…

We all battle good and bad hours. It’s during those tough times that we have to hold on and take note of what we’re doing, especially when it comes to diet and exercise.

Kristine Meldrum’s book  "How to Build a PD Exercise Cocktail Plan: A Professional's Companion Guidebook,” explains the need to find a specific routine for you. No one can do it for you. I’ll admit - I haven’t read the book yet, but I’ve seen Kristine speak in webinars and interviews with Karl Robb and Robert Cochrane. Her message is clear. Her heartfelt story about starting small and building slowly gave me hope and inspiration. Reminding me that I don’t have to be an athlete to be athletic. Yes, and disability doesn't mean giving up on setting new goals or reinventing a new exercise plan. 

Yes, and it is so very human to adapt. To change and grow. This is how Joseph Campbell’s Hero’s Journey has helped me over the years more times than I can count. Through cross-country moves. Surgeries and recoveries. Skills lost and found. Homes and life plans rewound. Joe was the one who always taught me to stay open-minded and go with the flow. 

The absolute most important time to go with the flow is when you’re listening to your body. You must go slow and listen to what your body is telling you. Whether or not you have a therapist's help, you must be our own best advocate by first being in tune with how our bodies react. And don’t be afraid to talk to your therapist - or change therapists if you meet one who isn’t experienced with your needs. 

Without a strict diet, our medication cannot help our bodies function properly. Finding the balance is key. I am very happy to be back in physical therapy.  At last, I don’t have to play the role of the solitary practitioner in charge of my own DIY physical therapy routine. Instinct and paying attention to some very talented therapists got me through, but having the right support makes all the difference. 

We can’t always control what our bodies are going to do. Don’t be afraid to step outside your comfort zone and try something new. Improv creativity and play can be incorporated into every aspect of our lives. After all, that’s why we call ourselves Yes, And…eXercise! 

I also want to take a moment to remember and honor Dave Parker. Sadly, he passed away before his induction date into the Baseball Hall of Fame. My heart goes out to his family. 

Our plans for the Legendary Parkinson’s Pickle to create an anthology with members of the Dave Parker 39 Foundation are proceeding with our silent Auction live and running until July 28th. Please check out the list of amazing items, including a signed baseball by Dave Parker himself. A boxing ring bell signed by Muhammad Ali and the autographed guitar Michael J. Fox played in Back to The Future. Making this a must-see event for all.  Check out the link here: https://www.yesandexercise.org/sandlot 

Have a great summer everyone!  

When my husband was diagnosed with Parkinson’s just over five years ago, it shifted everything. Our plans. Our priorities. Even how we see time. We realized life is now — not "one day" — and made a pact to stop waiting and start experiencing. And one of the most powerful things we’ve done since then is travel.

We’ve been all over, but we especially love Asia — for their lush nature, vibrant food, kind-hearted people, and the fact that it’s safe and surprisingly affordable. And while we travel for pleasure, we’ve come to understand that travel itself can be good medicine.

The Dopamine of Discovery — Literally

One of the major chemical players in Parkinson’s is dopamine, the feel-good neurotransmitter that helps regulate movement and motivation. As you know, in Parkinson’s, the brain gradually produces less of it.

Here’s the good news: new experiences — like those found in travel — stimulate the brain’s reward system, which releases dopamine. According to research published in Frontiers in Human Neuroscience, novel and emotionally positive experiences (such as those encountered during travel) can increase dopamine activity and enhance well-being. For us, each adventure feels like a natural dopamine boost — and we genuinely see the difference in his energy and mood.

How We Travel Now

We do things a little differently since Parkinson’s entered the picture, and planning is essential.

Half-day planning
Fatigue is a common symptom of Parkinson’s, so we only plan activities for half the day and leave the rest for rest or reflection. It’s made travelling more enjoyable and less stressful.

Avoiding crowds
Crowds can make movement harder — they increase stress and can trigger freezing. This is backed by studies from Movement Disorders Journal, which link anxiety and overstimulation with motor blocks. So, we plan visits early or pick quieter routes.

Timing medication
Crossing time zones or shifting your daily rhythm can throw off medication timing. Skipping or delaying a dose can increase symptoms — even freezing or falls. The PD Buddy app’s reminders have been vital on the road for keeping us on track.

Food and hydration

Dehydration can worsen orthostatic hypotension (a drop in blood pressure when standing), common in Parkinson’s. We prioritize water and eat light, fresh meals. Asian cuisines, rich in veggies and gut-friendly fermented foods, help him feel energized and balanced.

Climate awareness

People with Parkinson’s are often more sensitive to heat and cold. We check the weather ahead, book air-conditioned stays in hot regions, and pack cooling gear. Research from the International Parkinson and Movement Disorder Society confirms that temperature regulation is often impaired in PD — so we take it seriously.

Travel as a Teacher: What We’ve Learned from the Road

One of the most rewarding things about travel is what we learn from other cultures about managing Parkinson’s — tips we’d never find in a clinic leaflet.

 In Bali, we discovered Jamu — a traditional drink made from turmeric, ginger, and tamarind. Turmeric, rich in curcumin, has anti-inflammatory properties that are being researched for neuroprotective benefits in Parkinson’s.

In China, where nearly half of the world’s Parkinson’s population lives, we explored traditional medicine. We now include acupuncture in his care — not as a cure, but as a tool to reduce fatigue and pain. Clinical reviews (such as one in Parkinson’s Disease Journal, 2017) suggest acupuncture may improve motor function and quality of life.

Mind-body practices like Tai Chi, Qigong, yoga, and meditation, which we picked up in Asia, are now regular parts of his routine. There’s solid evidence (e.g., The New England Journal of Medicine, 2012) that Tai Chi improves balance and reduces falls in people with Parkinson’s. Plus, these practices help with anxiety, stiffness, and sleep.

In Japan, we discovered some brilliant lifestyle habits that really support Parkinson’s management. The clean, balanced diet stood out — loads of fresh fish rich in omega-3s, daily miso soup packed with fermented goodness, and beautifully small portions that never leave you feeling sluggish. The focus on seasonal, fresh produce and mindful eating really made a difference. We also noticed how walking is woven into daily life, and how calm, structured routines — from bathing rituals to quiet public spaces — can help reduce stress and support better symptom control. There’s a lot we can learn from Japanese culture when it comes to living well with Parkinson’s.

One thing we’ve truly come to appreciate during our travels — especially across Southeast Asia — is the deep love and respect for nature. In Vietnam, for example, we were struck by how environmentally aware people are. There's a real concern about pollution drifting in from neighboring China, and we saw lots of grassroots efforts to protect natural spaces — from banning single-use plastics in local markets to community clean-up drives. Elsewhere in the region, we’ve been inspired by the sustainable lifestyles on some of the Indian Ocean islands. Places like Koh Yao Noi in Thailand or Nusa Penida in Indonesia are making serious moves towards eco-living — banning plastic bags, encouraging reusable containers, and promoting local food grown on the island. Many of these island communities live entirely from what nature provides — eating what grows there, catching their own fish, and preserving traditional knowledge. It’s a refreshing perspective, and one that feels especially powerful when managing a long-term condition like Parkinson’s — reminding us to slow down, live simply, and tread lightly.

Spirituality and mindset
Being in places with a slower, more mindful approach to life has been healing. We’ve learned not just to manage Parkinson’s, but to befriend the present moment — to slow down, breathe, and be.

Parkinson’s doesn’t mean travel has to stop. It just means adapting — and sometimes, that’s where the magic happens. With a bit of preparation, awareness, and curiosity, the world is still wide open.

For us, traveling is more than just a holiday. It’s therapy. It’s learning. It’s connection. And most of all, it reminds us — and hopefully you — that this life, however unpredictable, is still full of wonder.

Practical Travel Tips (Tried and Tested!)

• Book accessible accommodation. Even if you don’t usually need grab bars or lifts, they’re invaluable when symptoms flare.
• Inform airlines in advance. Assistance through airports can save both energy and stress.
• Travel insurance matters. Make sure it covers Parkinson’s and any extras like acupuncture or medical equipment.
• Pack more meds than you need. And keep them in your hand luggage, with a doctor’s note if needed.
• Build in breathing space. Don’t overstuff the itinerary. Sometimes a day wandering the market beats five tourist sites.

One primary goal is awareness of a cure for Parkinson’s disease. I believe we will be closer to a cure through advocacy and awareness; however, it is not always easy. Most days, I sit and try to brainstorm ways to achieve a reach through the media.

I have written 15 letters on several occasions to media outlets such as television, including national stations and local. It is nearly impossible to gain a response and coverage in this critical area of bringing attention to PD. Is it because viewers are unaware, or is it insufficient for their ratings? I am not sure, but when I see the stories the media shares and the lack of information about Parkinson’s, it is shocking. 

As one of the fastest-growing neurological disorders worldwide, you may think the coverage would be much more effective and efficient. However, that is not the case, especially for local advocates. I have attended many local walks and events to raise awareness, but the media does not exist. 

We need a cure, but the key is teaching the world, and the media, celebrities, and all of us joining together can make a difference, but we are far from the needed media support. Unless a specific reporter is affected by PD through their family, responses are the noise of only crickets, which is heartbreaking. The amount of time media spends on stories that include violence and stories that do not apply to the regular everyday person or families and those affected by PD is shocking to me. 

We must reach all media outlets to gain attention for this critical movement and advance toward a cure and end of PD.

NBC, ABC, CBS, Fox, and every avenue and venue need to come to the table and help save lives. Their devotion to politics and crime stories is unmatchable; imagine if they spent a few moments ensuring coverage on PD awareness, research, and so many communities touched PD would be a game changer but as of today, in my experience, the lack of care and response is draining, frustrating and shocking. 

However, no matter what, we all must join hands, continue to call and write your local media from newspapers, television, and social media, and ensure we all are talking about, and pushing anyone we meet of the importance and urgency for a PD cure. Awareness through local, city and national attention would change the path and speed of a cure may be at all our doorsteps. 

Joy is a choice and a right. We all have a human need to practice it in our daily lives. Finding your niche, your groove, your thing, is how you find your bliss. The happy place where healing miracles happen. 

Nature’s Rhythm Speaks to Me

I love the sights and sounds of nature. Rushing rivers mingling with birdsong in springtime, the shifting rhythm of rain and the driving force of thunder and lightning. A stir of rising winds in the distance that often signals change. The song the ocean sings as it caresses the coastline between land and sea speaks to us all. In places like these, we find healing joy that moves with the flow of the universe. 

Motherhood Memories, Art and Music 

I love music with every fiber of my being. Making music and singing karaoke with my kids have been some of our best times. A shared taste in music and painting along with Bob Ross videos became a tradition that connected us across generations. Memories filled with awe and delight as I watched my children's musical and artistic talents blossom and grow.  

Writing Against all Odds

Over the years we learned new crafts while I lost my ability to do others, including my ability to type. For years I experienced burning pain and numbness in my hands due to nerve damage, carpal tunnel and radial tunnel issues that were never surgically corrected. 

Stubbornly I kept writing poetry and scribbling research notes in scrapbooks with fat markers. Never giving up my writer's dream. Holding on to my love of that artform by the skin of my teeth. 

Reclaiming Joy with Clay

While living in rural parts of the country, crafting helped me combat the loneliness of social isolation. Years previously I lost my ability to knit, make jewelry and I have terrible difficulty working the simplest clasp. I started working with clay and I experienced a healing connection. I am both shocked and amazed to discover my shaking and fumbling hands work for me more than against me.

Healing Power of Connection 

Reading, writing, storytelling, and advocacy are the center of my existence while I start life anew. Yes, and all I’ve learned is setting me free from most of my social isolation. While in the past I’ve gathered much of my seasonal bliss and healing flow from gardening, my PD symptoms caused multiple falls. This spring I sow my seeds of love in my stories, each one rooted in hope. It gives me great fulfillment to connect with the PD community and share what I’ve learned.

Walk Your Own Path 

How you tap into your bliss is to find what matters to you for reasons you can’t explain in words. Only in the feeling it gives you. Practice these activities and allow them to distract you from what ails you. Even if it’s only for a moment or two at a time. When you can find what brings you peace, and turn that into something you do regularly, it then becomes an exercise that makes room for cognitive healing. 

Rebirth Through Improv 

One of the most profound shifts in my emotional well being happened when I joined Robert Cochrane’s Jam for Joy improv program. What started as online fun and games became a powerful tool for healing. The day I learned how to “Yes, And”…life  and apply it as an exercise, it set my mind free in ways traditional therapy and self help books don’t . The longer I was involved in the program, the more my symptoms improved. 

Miracles Happen : Unlocking my Hands and Finding My Voice

The most miraculous improvement is the return of my ability to type. Two months into my first round of Cinema Therapy class in 2023, I transformed from having trouble highlighting people's work, into someone who can out-type a much younger version of myself. I still experience pain and off periods of time. It’s nothing like it was before. No medication changes, just finding connection and real emotional support healed me in many ways. Restoring my confidence and giving me a sense of self. 

In a nutshell, by finding my bliss through Robert Cochrane’s Cinema Therapy program, I found a way to reboot my brain. It taught me how to redirect the way I deal with stress, pain and past trauma. Helping me see life for what it can be instead of feeling limited by the negative stigma of what people say we can’t be because of PD. Thanks to the magic words: Yes, And…

It’s Up to You 

Find your bliss. Share your world. Connect with the PD community and above all find a way to tell your story. It doesn’t matter if you share it with an original work of art, a heartfelt song or like me,  a dream come true opportunity to write a screenplay with a wonderful group of talented people. When you can take the focus off what is wrong with you, and instead focus on what is not wrong with your life, you might just find a way to open doors into your wildest dreams. 

Join Our Team  

Yes, and, as the newly appointed secretary for Yes,And…eXercise!, I invite everyone to check out the latest happenings at www.yesandexercise.org Highlighting our Sandlot -  FIeld of Dreams and WIDS (What I Didn’t Say)  developing class projects. 

In celebration of Dave Parker's induction into the Baseball Hall of Fame, Yes, And…eXercise! is hosting a silent auction featuring autographed merchandise from the movie, The Sandlot to raise funds for a future Cinema Therapy class that will help members of the Dave Parker Foundation. You can learn more here: https://www.yesandexercise.org/sandlot 

Or by checking out the Dave Parker foundation homepage:https://www.daveparker39foundation.com/