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Events

Calendar of Events

From a keynote speaker series about groundbreaking treatments, to monthly gatherings that build our community and a day of service designed to enrich the lives of those affected by YOPD, we hope you’ll keep your calendar up to date. We look forward to meeting you at an upcoming event.

    • 01/09/2025
    • 9:00 AM - 10:00 AM
    • Virtual Event
    Register

    PMD Alliance presents Rescue DBS and Maximizing your DBS Results

    Register Here

    If you've already had Deep Brain Stimulation (DBS) and have not had desired results, whether because of programming challenges or some other reason, join us to learn from DBS rescue expert, Casey Halpern, MD. He will discuss his approach to fine tuning and maximizing DBS results and what factors might lead someone to consider a second surgery.

    Casey Halpern, MD is the Division Head of Functional and Stereotactic Neurosurgery as well as Associate Professor of Neurosurgery at Penn Medicine.

    • 01/14/2025
    • 7:00 PM
    • Virtual
    Register

    Speaker Series - Speak Out!

    January 14, 2025 7:00 - 8:00 PM EST

    Join us to learn about a program designed to keep your voice strong with YOPD.

    • People with Parkinson's have much more control over their muscles that they may think
    • Early intervention with speech therapy is essential
    • Parkinson's Voice Project is a non profit organization that does not charge for any of our services. We are with our patients for the long haul.

      About Hilary Byatt, MS, CCC-SLP

      Hilary Byatt is a Speech-Language Pathologist and the Chief Operating Officer of Parkinson Voice Project®. She graduated from Southern Methodist University in Dallas with a Bachelor of Business Administration degree in Finance and a Master of Science in Communication Disorders from the University of Texas at Dallas. She has over 30 years of experience in healthcare. 

      The SPEAK OUT!® Therapy Program, developed by Parkinson Voice Project, helps people with Parkinson’s and related neurological disorders regain and retain their speech and swallowing. This highly effective, evidence-based treatment combines education, individual and group speech therapy, daily home practice, and continuous follow-ups. Patients are empowered to “speak with INTENT,” transitioning speech from an automatic function to an intentional act.

      The SPEAK OUT! Therapy Grant Program provides free or discounted training and therapy material to speech-language pathologists, universities, and other clinics worldwide.  We want our SPEAK OUT! Therapy Program to be accessible to patients and families everywhere

      • 01/28/2025
      • 7:00 PM
      • Virtual Event
      Register

      Monthly Member Community Gathering - January

      January 28, 2025 - 7:00 - 8:00 PM EST


      Each month, YOPN members come together to learn, engage, and support one another.  It's a great opportunity to connect with fellow members, share experiences and insights about living with YOPD,  discuss personal challenges as well as potential opportunities, and learn how others thrive beyond diagnosis.  This is your safe space - a place you can be real with others who understand what you're experiencing.

      Don't miss this opportunity to connect with YOPN members and explore what's possible as you create your own path forward. 

      • 01/29/2025
      • 7:00 AM - 8:00 AM
      • Virtual Event
      Register

      PMD Alliance presents

      Treating with Sound - Focused Ultrasound for PD & ET

      Register Here

      An Introduction to Focused Ultrasound for Parkinson’s Disease and Essential Tremor

      Join us for a foundational overview of focused ultrasound technology with Tim Meakem from Focused Ultrasound Foundation, and hear from a focused ultrasound patient, Bobby Krause, who will share his treatment experience, providing first-hand insights into the journey. 

      ~

      Focused Ultrasound Foundation was founded to improve the lives of millions of people with serious medical disorders by accelerating the development and adoption of focused ultrasound.

      Bobby Krause was diagnosed in 2016 with young onset Parkinson’s disease at age 42. He is the president and founder of Be Still Foundation, an organization created to help cover the costs, raise awareness and provide education on the benefits of Focused Ultrasound therapy for those in need of tremor relief.


    Past Events

    12/17/2024 Monthly Member Community Gathering - December
    12/10/2024 Become a Deep Brain Stimulation (DBS) Resource for Yourself and Others
    11/26/2024 Monthly Member Community Gathering - November
    11/12/2024 Don't Wait Until It's Too Late- Exercise is the One Thing that Can Give You Back Control
    10/22/2024 Monthly Member Community Gathering - October
    10/08/2024 Managing OFF episodes
    09/24/2024 Monthly Member Community Gathering - September
    09/10/2024 Chat with the Champions - Jimmy Choi, Todd Vogt and Keri Shaw
    08/27/2024 Monthly Member Community Gathering - August
    08/22/2024 More Good On Time Each Day - 3PM EDT Session
    08/22/2024 More Good On Time Each Day- 12PM EDT Session
    08/13/2024 Future-Proofing Today's Home for Tomorrow's Needs
    07/30/2024 Monthly Member Community Gathering - July 2024
    07/16/2024 Our Great Adventure - Kat and Ken Hill
    06/25/2024 Monthly Member Community Gathering - June 2024
    06/11/2024 Preventing Freezing of Gait using Wearable Robotics in Parkinson's Disease
    05/28/2024 Monthly Member Community Gathering - May 2024
    05/14/2024 Finding your Balance: Strategies for Weight Management in Parkinson's Disease - Part Two
    04/23/2024 Monthly Member Community Gathering - April 2024
    04/09/2024 Finding your Balance: Strategies for Weight Management in Parkinson's Disease - Part One
    03/26/2024 Monthly Member Community Gathering - March 2024
    03/12/2024 Tech-Enabled Triumphs over Parkinson's Disease
    02/27/2024 Monthly Member Community Gathering - February 2024
    02/13/2024 Advocacy, Research, and a Path to the Cure
    01/25/2024 DC Metro Live Event
    01/23/2024 Monthly Member Community Gathering - January 2024
    01/17/2024 L.A. Live Event
    01/09/2024 There is no Normal with Brenda Heckert
    12/19/2023 Monthly Member Community Gathering - December 2023
    12/05/2023 Improvisation for Parkinson's
    11/28/2023 Monthly Member Community Gathering - November
    11/14/2023 Dr. Laurie Mischley - Nutritional Deficiencies and Supplement Use for YOPD Patients
    10/24/2023 Monthly Member Community Gathering - October 2023
    10/10/2023 When Life doesn't go as planned
    09/26/2023 Monthly Member Community Gathering - September
    09/12/2023 Deep Brain Stimulation Treatments for Parkinson's Disease
    08/29/2023 Monthly Member Community Gathering - August
    08/15/2023 World Parkinson's Congress Recap
    07/25/2023 Monthly Member Community Gathering - July
    07/11/2023 Understanding OFF Episodes and Dyskinesia in Parkinson's Disease
    07/04/2023 World Parkinson's Congress - Are You Going?
    06/27/2023 Monthly Member Community Gathering - June 2023
    06/13/2023 Psychological Flexibility: What is it and why is it important for YOPD?
    05/23/2023 Monthly Member Community Gathering - May 2023
    05/09/2023 Intimacy with PD: 10 Steps to Make It Easier
    04/25/2023 Monthly Member Community Gathering - April 2023
    04/11/2023 Your Brain on Art: How the Arts Transform Us
    03/28/2023 Monthly Member Community Gathering - March 2023
    03/14/2023 The ABC's of Social Security Disability Insurance
    02/28/2023 Monthly Member Community Gathering - February 2023
    02/13/2023 Winter Blues? Managing Stress, Anxiety & Depression
    01/24/2023 Monthly Member Community Gathering - January 2023
    01/12/2023 Dr. Robert Cochrane's 'Jam's for Joy'
    01/10/2023 Improvisation and storytelling: it's funny how much this can help
    12/20/2022 Monthly Member Community Gathering - December 2022
    12/13/2022 Fireside Chat with Brian Grant
    11/22/2022 Monthly Member Community Gathering - November 2022
    11/07/2022 Roundtable Discussion on Current YOPD Research & Findings with Dr. Laurie Mischley
    10/25/2022 Monthly Member Community Gathering - October 2022
    10/11/2022 Managing OFF Episodes in Parkinson's Disease
    09/27/2022 Monthly Member Community Gathering - September 2022
    09/24/2022 YOPN Day of Service
    09/13/2022 Exciting Advances in YOPD Genetic Research and Related Treatments
    08/23/2022 Monthly Member Community Gathering - August 2022
    08/16/2022 Therapeutic Options for Treating YOPD
    06/28/2022 Monthly Member Community Gathering - June 2022
    06/14/2022 Jimmy Choi on Navigating Family Dynamics with YOPD
    05/24/2022 Monthly Member Community Gathering - May 2022
    05/18/2022 Instagram Live Event - YOPN and My Parkinson's Gym
    05/10/2022 YOPD Nutrition Course with Dr. Laurie Mischley (Spring 2022)
    04/26/2022 Monthly Member Community Gathering - April 2022 - CANCELLED
    04/12/2022 Creating a Lifetime of Financial Security (Part 2)
    03/22/2022 Monthly Member Community Gathering - March 2022
    03/08/2022 Creating a Lifetime of Financial Security (Part 1)
    02/22/2022 Monthly Member Community Gathering - February 2022
    02/08/2022 Jimmy Choi on Managing a Career While Managing YOPD
    01/18/2022 The Neuroscience of Gratitude with Linda Roszak Burton

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    A program of Parkinson & Movement Disorder Alliance, a national 501(c)(3) nonprofit that educates, empowers, and connects people across the Movement Disorder Care and Support Ecosystem ©.

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