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Events

Calendar of Events

From a keynote speaker series about groundbreaking treatments, to monthly gatherings that build our community and a day of service designed to enrich the lives of those affected by YOPD, we hope you’ll keep your calendar up to date. We look forward to meeting you at an upcoming event.

    • 05/28/2024
    • 7:00 PM
    • Virtual Event
    Register

    Monthly Member Community Gathering

    May 28, 2024 - 7:00 - 8:00 PM EDT

    On the fourth Tuesday of each month, YOPN members come together to learn, engage, and support one another.  It's a great opportunity to connect with fellow members, share experiences and insights about living with YOPD,  discuss personal challenges as well as potential opportunities, and learn how others thrive beyond diagnosis.  This is your safe space - a place you can be real with others who understand what you're experiencing.

    Don't miss this opportunity to connect with YOPN members and explore what's possible as you create your own path forward.

    • 06/11/2024
    • 7:00 PM
    • Virtual Event
    Register

    Speaker Series - Preventing Freezing of Gait using Wearable Robotics in Parkinson's Disease

    June 11, 2024 7:00 PM EDT

    We are honored to have three esteemed researchers presenting on Gait dysfunction. 

    • Understand how Freezing of Gait impacts movement and walking in PD
    • Explore the potential of next-generation wearable robotics to improve Freezing of Gait in people with PD. 
    • Learn about ways to help us develop impactful solutions aimed at preventing Freezing of Gait using wearable robotics

    About the Presenters

    Franchino Porciuncula, PT, DScPT, EdD is a Research Assistant Professor of Physical Therapy at Boston University.  Trained as a physical therapist and as a rehabilitation scientist, Dr. Porciuncula’s research focuses  on developing rehabilitation/exercise interventions by targeting biomechanical, cognitive, and behavioral processes of gait dysfunction. His research includes the development of wearable technologies through robotics and digital health solutions to promote sustainable and impactful outcomes in Parkinson’s disease (PD), stroke, and other movement disorders. 

    Nicholas Wendel, PT, DPT, NCS: Nick is a physical therapist at the Center for Neurorehabilitation where he provides patient care and participates in research and education activities with persons with Parkinson disease and related movement disorders. Prior to joining the Center for Neurorehabilitation, he was a senior physical therapist at Newton-Wellesley Hospital where he provided physical therapy to patients with various neurologic conditions including Parkinson Disease, stroke, concussion, multiple sclerosis and individuals with balance dysfunction. 

    Christina Lee, Ph.D. is a postdoctoral fellow in bioengineering at the Harvard Biodesign Lab. She received her Ph.D. in 2023 from The University of Michigan and her B.S. and M.S. in 2018 from Northwestern University, in biomedical engineering. Her research interests lie in understanding how individuals with neuromuscular impairment interact with assistive devices through the investigation of fundamental biomechanics and performance-related measures during device use in the lab and in the community.

    • 06/25/2024
    • 7:00 PM
    • Virtual Event
    Register

    Monthly Member Community Gathering

    June 25, 2024 - 7:00 - 8:00 PM EDT

    On the fourth Tuesday of each month, YOPN members come together to learn, engage, and support one another.  It's a great opportunity to connect with fellow members, share experiences and insights about living with YOPD,  discuss personal challenges as well as potential opportunities, and learn how others thrive beyond diagnosis.  This is your safe space - a place you can be real with others who understand what you're experiencing.

    Don't miss this opportunity to connect with YOPN members and explore what's possible as you create your own path forward.

    • 07/16/2024
    • 7:00 PM
    • Virtual Event
    Register

    Speaker Series - Adventures with YOPD

    July 16, 2024 7:00 PM EDT

     

    Kat and Ken Hill will join us to talk about their two year adventure living in a 22-foot trailer while traveling around the USA. They will share about the lessons learned and challenges encountered along the way.


    ·      Benefits of living with less stuff while managing PD

    ·      The energy it takes to travel.

    ·      Living in the moment with progressing disease and age.

    Kat Hill is based in the Pacific Northwest, US. She believes that we can choose joy in our lives no matter what we are faced with. Movement, mindfulness and gratitude help her navigate the challenges of living with Young Onset Parkinson’s disease. After her diagnosis at age 48 she left her career as a nurse midwife after delivering over 800 babies.

    She and her husband Ken have spent the last 18 months living and traveling in an Airstream caravan with their trusty Yorkshire terrier Baxter.

    Kat is an author and advocate for finding wellness despite a diagnosis. She speaks around the world for the World Parkinson Congress and The Davis Phinney Foundation and is also a co-founder of the Women’s Parkinson’s Project. Her co-authored book, Being Well with Chronic Illness, Hatherleigh Press is available at all book outlets. You can find her at www.kathill.org.

    Ken Hill recently completed a 30-plus year career in public health information technology. His wife Kat was diagnosed with YOPD in 2015. They are proud to have three adult children.  Ken has lead a Parkinson’s care-partners support group, volunteered with Parkinson’s Resources of Oregon, and helped coordinate 130 volunteers during the 2023 World Parkinson’s Congress in Barcelona, Spain. Ken is now a Firefighter in High Prairie, Washington.

    • 07/30/2024
    • 7:00 PM
    • Virtual Event
    Register

    Monthly Member Community Gathering

    July 30, 2024 - 7:00 - 8:00 PM EDT

    Each month, YOPN members come together to learn, engage, and support one another.  It's a great opportunity to connect with fellow members, share experiences and insights about living with YOPD,  discuss personal challenges as well as potential opportunities, and learn how others thrive beyond diagnosis.  This is your safe space - a place you can be real with others who understand what you're experiencing.

    Don't miss this opportunity to connect with YOPN members and explore what's possible as you create your own path forward.

Past Events

05/14/2024 Finding your Balance: Strategies for Weight Management in Parkinson's Disease - Part Two
04/23/2024 Monthly Member Community Gathering - April 2024
04/09/2024 Finding your Balance: Strategies for Weight Management in Parkinson's Disease - Part One
03/26/2024 Monthly Member Community Gathering - March 2024
03/12/2024 Tech-Enabled Triumphs over Parkinson's Disease
02/27/2024 Monthly Member Community Gathering - February 2024
02/13/2024 Advocacy, Research, and a Path to the Cure
01/25/2024 DC Metro Live Event
01/23/2024 Monthly Member Community Gathering - January 2024
01/17/2024 L.A. Live Event
01/09/2024 There is no Normal with Brenda Heckert
12/19/2023 Monthly Member Community Gathering - December 2023
12/05/2023 Improvisation for Parkinson's
11/28/2023 Monthly Member Community Gathering - November
11/14/2023 Dr. Laurie Mischley - Nutritional Deficiencies and Supplement Use for YOPD Patients
10/24/2023 Monthly Member Community Gathering - October 2023
10/10/2023 When Life doesn't go as planned
09/26/2023 Monthly Member Community Gathering - September
09/12/2023 Deep Brain Stimulation Treatments for Parkinson's Disease
08/29/2023 Monthly Member Community Gathering - August
08/15/2023 World Parkinson's Congress Recap
07/25/2023 Monthly Member Community Gathering - July
07/11/2023 Understanding OFF Episodes and Dyskinesia in Parkinson's Disease
07/04/2023 World Parkinson's Congress - Are You Going?
06/27/2023 Monthly Member Community Gathering - June 2023
06/13/2023 Psychological Flexibility: What is it and why is it important for YOPD?
05/23/2023 Monthly Member Community Gathering - May 2023
05/09/2023 Intimacy with PD: 10 Steps to Make It Easier
04/25/2023 Monthly Member Community Gathering - April 2023
04/11/2023 Your Brain on Art: How the Arts Transform Us
03/28/2023 Monthly Member Community Gathering - March 2023
03/14/2023 The ABC's of Social Security Disability Insurance
02/28/2023 Monthly Member Community Gathering - February 2023
02/13/2023 Winter Blues? Managing Stress, Anxiety & Depression
01/24/2023 Monthly Member Community Gathering - January 2023
01/12/2023 Dr. Robert Cochrane's 'Jam's for Joy'
01/10/2023 Improvisation and storytelling: it's funny how much this can help
12/20/2022 Monthly Member Community Gathering - December 2022
12/13/2022 Fireside Chat with Brian Grant
11/22/2022 Monthly Member Community Gathering - November 2022
11/07/2022 Roundtable Discussion on Current YOPD Research & Findings with Dr. Laurie Mischley
10/25/2022 Monthly Member Community Gathering - October 2022
10/11/2022 Managing OFF Episodes in Parkinson's Disease
09/27/2022 Monthly Member Community Gathering - September 2022
09/24/2022 YOPN Day of Service
09/13/2022 Exciting Advances in YOPD Genetic Research and Related Treatments
08/23/2022 Monthly Member Community Gathering - August 2022
08/16/2022 Therapeutic Options for Treating YOPD
06/28/2022 Monthly Member Community Gathering - June 2022
06/14/2022 Jimmy Choi on Navigating Family Dynamics with YOPD
05/24/2022 Monthly Member Community Gathering - May 2022
05/18/2022 Instagram Live Event - YOPN and My Parkinson's Gym
05/10/2022 YOPD Nutrition Course with Dr. Laurie Mischley (Spring 2022)
04/26/2022 Monthly Member Community Gathering - April 2022 - CANCELLED
04/12/2022 Creating a Lifetime of Financial Security (Part 2)
03/22/2022 Monthly Member Community Gathering - March 2022
03/08/2022 Creating a Lifetime of Financial Security (Part 1)
02/22/2022 Monthly Member Community Gathering - February 2022
02/08/2022 Jimmy Choi on Managing a Career While Managing YOPD
01/18/2022 The Neuroscience of Gratitude with Linda Roszak Burton

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Young Onset Parkinson’s Network is sponsored in part by a grant from the Parkinson’s Foundation.

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