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Events

Calendar of Events

From a keynote speaker series about groundbreaking treatments, to monthly gatherings that build our community and a day of service designed to enrich the lives of those affected by YOPD, we hope you’ll keep your calendar up to date. We look forward to meeting you at an upcoming event.

    • 12/17/2024
    • 7:00 PM
    • Virtual Event
    Register

    Monthly Member Community Gathering - December

    December 17, 2024 - 7:00 - 8:00 PM EST


    Each month, YOPN members come together to learn, engage, and support one another.  It's a great opportunity to connect with fellow members, share experiences and insights about living with YOPD,  discuss personal challenges as well as potential opportunities, and learn how others thrive beyond diagnosis.  This is your safe space - a place you can be real with others who understand what you're experiencing.

    Don't miss this opportunity to connect with YOPN members and explore what's possible as you create your own path forward. 

    • 01/09/2025
    • 9:00 AM - 10:00 AM
    • Virtual Event
    Register

    PMD Alliance presents Rescue DBS and Maximizing your DBS Results

    Register Here

    If you've already had Deep Brain Stimulation (DBS) and have not had desired results, whether because of programming challenges or some other reason, join us to learn from DBS rescue expert, Casey Halpern, MD. He will discuss his approach to fine tuning and maximizing DBS results and what factors might lead someone to consider a second surgery.

    Casey Halpern, MD is the Division Head of Functional and Stereotactic Neurosurgery as well as Associate Professor of Neurosurgery at Penn Medicine.

    • 01/29/2025
    • 7:00 AM - 8:00 AM
    • Virtual Event
    Register

    PMD Alliance presents

    Treating with Sound - Focused Ultrasound for PD & ET

    Register Here

    An Introduction to Focused Ultrasound for Parkinson’s Disease and Essential Tremor

    Join us for a foundational overview of focused ultrasound technology with Tim Meakem from Focused Ultrasound Foundation, and hear from a focused ultrasound patient, Bobby Krause, who will share his treatment experience, providing first-hand insights into the journey. 

    ~

    Focused Ultrasound Foundation was founded to improve the lives of millions of people with serious medical disorders by accelerating the development and adoption of focused ultrasound.

    Bobby Krause was diagnosed in 2016 with young onset Parkinson’s disease at age 42. He is the president and founder of Be Still Foundation, an organization created to help cover the costs, raise awareness and provide education on the benefits of Focused Ultrasound therapy for those in need of tremor relief.


Past Events

12/10/2024 Become a Deep Brain Stimulation (DBS) Resource for Yourself and Others
11/26/2024 Monthly Member Community Gathering - November
11/12/2024 Don't Wait Until It's Too Late- Exercise is the One Thing that Can Give You Back Control
10/22/2024 Monthly Member Community Gathering - October
10/08/2024 Managing OFF episodes
09/24/2024 Monthly Member Community Gathering - September
09/10/2024 Chat with the Champions - Jimmy Choi, Todd Vogt and Keri Shaw
08/27/2024 Monthly Member Community Gathering - August
08/22/2024 More Good On Time Each Day - 3PM EDT Session
08/22/2024 More Good On Time Each Day- 12PM EDT Session
08/13/2024 Future-Proofing Today's Home for Tomorrow's Needs
07/30/2024 Monthly Member Community Gathering - July 2024
07/16/2024 Our Great Adventure - Kat and Ken Hill
06/25/2024 Monthly Member Community Gathering - June 2024
06/11/2024 Preventing Freezing of Gait using Wearable Robotics in Parkinson's Disease
05/28/2024 Monthly Member Community Gathering - May 2024
05/14/2024 Finding your Balance: Strategies for Weight Management in Parkinson's Disease - Part Two
04/23/2024 Monthly Member Community Gathering - April 2024
04/09/2024 Finding your Balance: Strategies for Weight Management in Parkinson's Disease - Part One
03/26/2024 Monthly Member Community Gathering - March 2024
03/12/2024 Tech-Enabled Triumphs over Parkinson's Disease
02/27/2024 Monthly Member Community Gathering - February 2024
02/13/2024 Advocacy, Research, and a Path to the Cure
01/25/2024 DC Metro Live Event
01/23/2024 Monthly Member Community Gathering - January 2024
01/17/2024 L.A. Live Event
01/09/2024 There is no Normal with Brenda Heckert
12/19/2023 Monthly Member Community Gathering - December 2023
12/05/2023 Improvisation for Parkinson's
11/28/2023 Monthly Member Community Gathering - November
11/14/2023 Dr. Laurie Mischley - Nutritional Deficiencies and Supplement Use for YOPD Patients
10/24/2023 Monthly Member Community Gathering - October 2023
10/10/2023 When Life doesn't go as planned
09/26/2023 Monthly Member Community Gathering - September
09/12/2023 Deep Brain Stimulation Treatments for Parkinson's Disease
08/29/2023 Monthly Member Community Gathering - August
08/15/2023 World Parkinson's Congress Recap
07/25/2023 Monthly Member Community Gathering - July
07/11/2023 Understanding OFF Episodes and Dyskinesia in Parkinson's Disease
07/04/2023 World Parkinson's Congress - Are You Going?
06/27/2023 Monthly Member Community Gathering - June 2023
06/13/2023 Psychological Flexibility: What is it and why is it important for YOPD?
05/23/2023 Monthly Member Community Gathering - May 2023
05/09/2023 Intimacy with PD: 10 Steps to Make It Easier
04/25/2023 Monthly Member Community Gathering - April 2023
04/11/2023 Your Brain on Art: How the Arts Transform Us
03/28/2023 Monthly Member Community Gathering - March 2023
03/14/2023 The ABC's of Social Security Disability Insurance
02/28/2023 Monthly Member Community Gathering - February 2023
02/13/2023 Winter Blues? Managing Stress, Anxiety & Depression
01/24/2023 Monthly Member Community Gathering - January 2023
01/12/2023 Dr. Robert Cochrane's 'Jam's for Joy'
01/10/2023 Improvisation and storytelling: it's funny how much this can help
12/20/2022 Monthly Member Community Gathering - December 2022
12/13/2022 Fireside Chat with Brian Grant
11/22/2022 Monthly Member Community Gathering - November 2022
11/07/2022 Roundtable Discussion on Current YOPD Research & Findings with Dr. Laurie Mischley
10/25/2022 Monthly Member Community Gathering - October 2022
10/11/2022 Managing OFF Episodes in Parkinson's Disease
09/27/2022 Monthly Member Community Gathering - September 2022
09/24/2022 YOPN Day of Service
09/13/2022 Exciting Advances in YOPD Genetic Research and Related Treatments
08/23/2022 Monthly Member Community Gathering - August 2022
08/16/2022 Therapeutic Options for Treating YOPD
06/28/2022 Monthly Member Community Gathering - June 2022
06/14/2022 Jimmy Choi on Navigating Family Dynamics with YOPD
05/24/2022 Monthly Member Community Gathering - May 2022
05/18/2022 Instagram Live Event - YOPN and My Parkinson's Gym
05/10/2022 YOPD Nutrition Course with Dr. Laurie Mischley (Spring 2022)
04/26/2022 Monthly Member Community Gathering - April 2022 - CANCELLED
04/12/2022 Creating a Lifetime of Financial Security (Part 2)
03/22/2022 Monthly Member Community Gathering - March 2022
03/08/2022 Creating a Lifetime of Financial Security (Part 1)
02/22/2022 Monthly Member Community Gathering - February 2022
02/08/2022 Jimmy Choi on Managing a Career While Managing YOPD
01/18/2022 The Neuroscience of Gratitude with Linda Roszak Burton

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A program of Parkinson & Movement Disorder Alliance, a national 501(c)(3) nonprofit that educates, empowers, and connects people across the Movement Disorder Care and Support Ecosystem ©.

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