As we begin 2025, the Parkinson's community has been actively celebrating many achievements and awards. The love so many of us have put into our advocacy has cultivated many fruits for our efforts in 2024.
Our dear leader, Micheal J. Fox, was awarded the Presidential Medal of Freedom. His life achievements are celebrated and honored in the highest regard. None of us in the PD community would have anything without his guiding light showing us the path to a new tomorrow. His ongoing Hero's Journey inspires us to give all to this fight.
Yes, and while we continue to fight. Many of us have experienced loss this past year. We grieve for our parents and lost loved ones and friends while we worry about our children. We wonder how our conditions will progress while we stand up for the right to fight for our planet.
Grief comes in many forms, as a woman diagnosed after too many years of confusion. I also grieve for the person I might have been when my kids were young had I been diagnosed sooner. Rebranding of how we view this disease has to start now.
We continue to watch and wait to see if paraquat will be added to the list of banned toxic chemicals. I wish to share my poem, Free Will. Like many poems I've shared, I've been waiting for the right time to share them. Neil Peart and my mother have been gone for 5 years. While neither one of their deaths was caused by PD, their passing, along with the tragic loss of Taylor Hawkens, hit my life with emotional blows that affected me deeply, including disrupting my hormonal function and making my symptoms worse. Free Will was born during that traumatic time.
Future generations deserve to know the truth about what they face. The experts are working on a second book on Ending Parkinson's Disease. Robert Cochrane's book Acceptances is another great example of how all our stories matter. We made a big difference and got the ball rolling towards change in 2024. I know we have enough love and determination in this great and growing team to make way for more great things to come.
Please listen world, for there's another way
You don't have to do what the mass majority says
For if you listen and do everything they say
You might not live to see another day.
Never would I have ever guessed
That two decades of rhyme and reason would be put to the test
All the things I thought were harmless and good
Were the worst things for me, but I never understood.
Then at last I found the holistic way
Though long years, I would still dismay
For way too much damage had been done
Still, many twists and turns and battles to be won.
Research was my sword. Yes, I read and looked
In books, on-line, all experts new and old were checked
Cross-referenced and tested and noted and booked
All remedies across the ages for bodies so wrecked
All of their stories to heart and mind I took.
And from all this knowledge, all my tea remedies grew
Into something resembling a thick, sweet, witchy brew
The smell is strong and somewhat bittersweet
And what ails the body these brews do treat..
For too many years, I listened to odd doctors and peers
Twisted and turned and wound up in tears
Every pill they tried just made everything worse
Their cocktails were said to be keeping me alive
Yet walk away from it all to never again dive
Into their mess that was pain pill derived
And back to mother earth who did keep me alive!
For her, remedies are old, tried, and true
Long before labs, those elders knew.
For too long, the masses have turned a deaf ear
If we listen and learn, it becomes very clear
For God only helps those who help themselves
And he made this Earth full of all that is good
With His gift of ethos, we can determine right and wrong
With open hearts capable of trust in need of a new song.
For not all things good have to come in a pill
Age-old remedies are grown and sold still
So before you try the latest greatest prescription fill
Open your mind to the exercise of free will
While modern medicine does have its place
TV and social media are not always a safe space
Pumping images of joy and hope in your face
The advice is not theirs to give
Yet like lost sheep we allow such to dictate how we live.
Does no one remember 'your brain on the box'?
Who would have thought decades of hard knocks
Would turn most of society into exactly what was
A fictional nightmare and all because
For too long, we have sat back and been told
In a pill or other quick fix, the future did hold
For far too long, these lies have been told
To all, from the very young to the mighty old
So it is Mother Nature who must now be bold
And stand up strong for the world must be told
That the answer to our future is not yet to be found
What will heal and fix most all is still grown from the ground.
Yes, and we have a responsibility to future generations to take better care of the ground we depend on for our very existence. We must exercise our free will. We need to tell our whole stories loud and proud.
Like Micheal J's famous character Marty Mcfly states and I quote. "If you put your mind to it. You can accomplish anything."
The way I see it. If we all put all our minds to it. We can find a cure for PD. One story at a time.