When it comes to Parkinson’s Disease, there's no silver bullet. But there is something surprisingly powerful, proven, and entirely within reach: exercise. No fluff, no hype — just solid science and real-world results.

Exercise Isn't Just Helpful — It's Essential

If exercise could be bottled into a pill, it would be the most prescribed treatment for Parkinson’s. That’s not just poetic — researchers are finding that regular physical activity may not only slow disease progression but might even improve symptoms and enhance brain health.

Professor Bas Bloem, a leading Dutch neurologist and one of the world’s top Parkinson’s experts, says exercise should be prescribed just like medication. Why? Because brain scans show something astonishing: after six months of regular exercise, people with Parkinson’s actually regrow dopamine transporters in the brain. These are the very systems that break down in Parkinson’s.

Tangible Benefits Backed by Research

Recent studies show that exercise:

• Improves balance, mobility, flexibility, and posture
  

• Enhances mood and mental clarity
  

• Strengthens muscles and bones
  

• Improves cardiovascular and lung function
  

• Reduces the risk of cognitive decline
  

• Might slow or even reverse some neurological damage
  

One Yale School of Medicine study found that intensive aerobic exercise may reverse neurodegeneration in Parkinson’s — something previously thought impossible. And there are over 130,000 articles on the topic and 137 active clinical trials exploring exercise and PD right now. This isn’t a fad — it’s a scientific movement.

What Kind of Exercise Works Best?

The best exercise is the one you’ll actually do. Research and patient experience suggest a mix of activities is ideal:

• Aerobic/Cardio (e.g. walking, cycling, cross-training): gets your heart pumping and improves stamina.
  

• Strength Training (e.g. weights or resistance bands): supports posture and everyday movement.
  

• Flexibility & Balance (e.g. yoga, Pilates, Tai Chi): enhances stability and helps prevent falls.
  

• Neuromotor Skills (e.g. dance, boxing, agility drills): boosts coordination and mental sharpness.
  

• Voice & Hand Exercises: often overlooked, but vital for communication and fine motor control.
  

Even “snack-sized” movement counts. Can't do an hour? Take the stairs. Do ten minutes here and there. It adds up.

Real Life: Michel’s Story

Michel, a member of the No Silver Bullet 4 PD community, exercises six days a week — and it shows. Diagnosed five years ago, he now hikes, strength-trains, cycles, and stretches. He's regained his handwriting with daily hand exercises. He uses voice training to maintain speech strength. His energy and symptom control have improved dramatically — and he credits consistency and variety.

What About Intensity?

Forget heart rate monitors — many people with PD can’t rely on them. Instead, follow the “pant and chat” rule: exercise hard enough that you're breathing heavier, but not so hard you can’t hold a conversation. Sweat is your friend.

And it helps to time your workouts for when your medication is working (your “on” time). Some people even slightly adjust their meds to ensure they can exercise effectively — always check with your doctor first.

But I’m Tired. Or Scared. Or Just Not Motivated.

You’re not alone. Fatigue, apathy, time, and fear of falling are real barriers. But here’s how people are pushing through:

• Use a trainer or physiotherapist — especially early on to build confidence.
  

• Exercise with a buddy — it’s more fun and keeps you accountable.
  

• Track your progress — apps like PD Buddy let you journal your routine, earn badges, and stay connected.
  

• Reward yourself — Michel swears by a long bath after training.
  
  

And if you're worried about falls, try stationary cycling. Four points of contact (hands and feet) make it safer than walking.

You don’t need to be an athlete to fight back against Parkinson’s — you just need to move. Consistently. Purposefully. And with hope.

If there were a pill with the same benefits as exercise, we’d all be lining up to get it. The good news? It already exists. It’s called movement — and it’s free.

So lace up. Plug in your favorite playlist. And start today — even five minutes is better than nothing.

It’s summertime, and at long last, I’ve found a physical therapist who understands Parkinson’s disease. Another first for me. While It’s work, I accept and appreciate the challenge. The warm weather this time of year is beneficial in many ways, as is having proper guidance for the first time in nearly five years. 

It’s been a lifelong journey discovering my workout routine. Using an exercise ball and different zoom videos has helped me stay active. I’m always interested in meeting new physical therapists. Each has their style or approach to various problem areas. 

When I discover a new stretch or routine that works well. I do my best to remember it and add it to the long list of ‘hacks' I use in the evenings when my dopamine levels aren’t playing nicely. Evenings I spend with distorting leg cramps, twisting my tendons tighter than wrung-out dish rags. On those nights, I reflect on the day’s water intake. Yes, and my exercise ball becomes my best friend. At least until my meds kick in and allow me to sleep. Sometimes…

We all battle good and bad hours. It’s during those tough times that we have to hold on and take note of what we’re doing, especially when it comes to diet and exercise.

Kristine Meldrum’s book  "How to Build a PD Exercise Cocktail Plan: A Professional's Companion Guidebook,” explains the need to find a specific routine for you. No one can do it for you. I’ll admit - I haven’t read the book yet, but I’ve seen Kristine speak in webinars and interviews with Karl Robb and Robert Cochrane. Her message is clear. Her heartfelt story about starting small and building slowly gave me hope and inspiration. Reminding me that I don’t have to be an athlete to be athletic. Yes, and disability doesn't mean giving up on setting new goals or reinventing a new exercise plan. 

Yes, and it is so very human to adapt. To change and grow. This is how Joseph Campbell’s Hero’s Journey has helped me over the years more times than I can count. Through cross-country moves. Surgeries and recoveries. Skills lost and found. Homes and life plans rewound. Joe was the one who always taught me to stay open-minded and go with the flow. 

The absolute most important time to go with the flow is when you’re listening to your body. You must go slow and listen to what your body is telling you. Whether or not you have a therapist's help, you must be our own best advocate by first being in tune with how our bodies react. And don’t be afraid to talk to your therapist - or change therapists if you meet one who isn’t experienced with your needs. 

Without a strict diet, our medication cannot help our bodies function properly. Finding the balance is key. I am very happy to be back in physical therapy.  At last, I don’t have to play the role of the solitary practitioner in charge of my own DIY physical therapy routine. Instinct and paying attention to some very talented therapists got me through, but having the right support makes all the difference. 

We can’t always control what our bodies are going to do. Don’t be afraid to step outside your comfort zone and try something new. Improv creativity and play can be incorporated into every aspect of our lives. After all, that’s why we call ourselves Yes, And…eXercise! 

I also want to take a moment to remember and honor Dave Parker. Sadly, he passed away before his induction date into the Baseball Hall of Fame. My heart goes out to his family. 

Our plans for the Legendary Parkinson’s Pickle to create an anthology with members of the Dave Parker 39 Foundation are proceeding with our silent Auction live and running until July 28th. Please check out the list of amazing items, including a signed baseball by Dave Parker himself. A boxing ring bell signed by Mahamid Alie and the autographed guitar Michael J. Fox played in Back to The Future. Making this a must-see event for all.  Check out the link here: https://www.yesandexercise.org/sandlot 

Have a great summer everyone!  

When my husband was diagnosed with Parkinson’s just over five years ago, it shifted everything. Our plans. Our priorities. Even how we see time. We realized life is now — not "one day" — and made a pact to stop waiting and start experiencing. And one of the most powerful things we’ve done since then is travel.

We’ve been all over, but we especially love Asia — for their lush nature, vibrant food, kind-hearted people, and the fact that it’s safe and surprisingly affordable. And while we travel for pleasure, we’ve come to understand that travel itself can be good medicine.

The Dopamine of Discovery — Literally

One of the major chemical players in Parkinson’s is dopamine, the feel-good neurotransmitter that helps regulate movement and motivation. As you know, in Parkinson’s, the brain gradually produces less of it.

Here’s the good news: new experiences — like those found in travel — stimulate the brain’s reward system, which releases dopamine. According to research published in Frontiers in Human Neuroscience, novel and emotionally positive experiences (such as those encountered during travel) can increase dopamine activity and enhance well-being. For us, each adventure feels like a natural dopamine boost — and we genuinely see the difference in his energy and mood.

How We Travel Now

We do things a little differently since Parkinson’s entered the picture, and planning is essential.

Half-day planning
Fatigue is a common symptom of Parkinson’s, so we only plan activities for half the day and leave the rest for rest or reflection. It’s made travelling more enjoyable and less stressful.

Avoiding crowds
Crowds can make movement harder — they increase stress and can trigger freezing. This is backed by studies from Movement Disorders Journal, which link anxiety and overstimulation with motor blocks. So, we plan visits early or pick quieter routes.

Timing medication
Crossing time zones or shifting your daily rhythm can throw off medication timing. Skipping or delaying a dose can increase symptoms — even freezing or falls. The PD Buddy app’s reminders have been vital on the road for keeping us on track.

Food and hydration

Dehydration can worsen orthostatic hypotension (a drop in blood pressure when standing), common in Parkinson’s. We prioritize water and eat light, fresh meals. Asian cuisines, rich in veggies and gut-friendly fermented foods, help him feel energized and balanced.

Climate awareness

People with Parkinson’s are often more sensitive to heat and cold. We check the weather ahead, book air-conditioned stays in hot regions, and pack cooling gear. Research from the International Parkinson and Movement Disorder Society confirms that temperature regulation is often impaired in PD — so we take it seriously.

Travel as a Teacher: What We’ve Learned from the Road

One of the most rewarding things about travel is what we learn from other cultures about managing Parkinson’s — tips we’d never find in a clinic leaflet.

 In Bali, we discovered Jamu — a traditional drink made from turmeric, ginger, and tamarind. Turmeric, rich in curcumin, has anti-inflammatory properties that are being researched for neuroprotective benefits in Parkinson’s.

In China, where nearly half of the world’s Parkinson’s population lives, we explored traditional medicine. We now include acupuncture in his care — not as a cure, but as a tool to reduce fatigue and pain. Clinical reviews (such as one in Parkinson’s Disease Journal, 2017) suggest acupuncture may improve motor function and quality of life.

Mind-body practices like Tai Chi, Qigong, yoga, and meditation, which we picked up in Asia, are now regular parts of his routine. There’s solid evidence (e.g., The New England Journal of Medicine, 2012) that Tai Chi improves balance and reduces falls in people with Parkinson’s. Plus, these practices help with anxiety, stiffness, and sleep.

In Japan, we discovered some brilliant lifestyle habits that really support Parkinson’s management. The clean, balanced diet stood out — loads of fresh fish rich in omega-3s, daily miso soup packed with fermented goodness, and beautifully small portions that never leave you feeling sluggish. The focus on seasonal, fresh produce and mindful eating really made a difference. We also noticed how walking is woven into daily life, and how calm, structured routines — from bathing rituals to quiet public spaces — can help reduce stress and support better symptom control. There’s a lot we can learn from Japanese culture when it comes to living well with Parkinson’s.

One thing we’ve truly come to appreciate during our travels — especially across Southeast Asia — is the deep love and respect for nature. In Vietnam, for example, we were struck by how environmentally aware people are. There's a real concern about pollution drifting in from neighboring China, and we saw lots of grassroots efforts to protect natural spaces — from banning single-use plastics in local markets to community clean-up drives. Elsewhere in the region, we’ve been inspired by the sustainable lifestyles on some of the Indian Ocean islands. Places like Koh Yao Noi in Thailand or Nusa Penida in Indonesia are making serious moves towards eco-living — banning plastic bags, encouraging reusable containers, and promoting local food grown on the island. Many of these island communities live entirely from what nature provides — eating what grows there, catching their own fish, and preserving traditional knowledge. It’s a refreshing perspective, and one that feels especially powerful when managing a long-term condition like Parkinson’s — reminding us to slow down, live simply, and tread lightly.

Spirituality and mindset
Being in places with a slower, more mindful approach to life has been healing. We’ve learned not just to manage Parkinson’s, but to befriend the present moment — to slow down, breathe, and be.

Parkinson’s doesn’t mean travel has to stop. It just means adapting — and sometimes, that’s where the magic happens. With a bit of preparation, awareness, and curiosity, the world is still wide open.

For us, traveling is more than just a holiday. It’s therapy. It’s learning. It’s connection. And most of all, it reminds us — and hopefully you — that this life, however unpredictable, is still full of wonder.

Practical Travel Tips (Tried and Tested!)

• Book accessible accommodation. Even if you don’t usually need grab bars or lifts, they’re invaluable when symptoms flare.
• Inform airlines in advance. Assistance through airports can save both energy and stress.
• Travel insurance matters. Make sure it covers Parkinson’s and any extras like acupuncture or medical equipment.
• Pack more meds than you need. And keep them in your hand luggage, with a doctor’s note if needed.
• Build in breathing space. Don’t overstuff the itinerary. Sometimes a day wandering the market beats five tourist sites.

One primary goal is awareness of a cure for Parkinson’s disease. I believe we will be closer to a cure through advocacy and awareness; however, it is not always easy. Most days, I sit and try to brainstorm ways to achieve a reach through the media.

I have written 15 letters on several occasions to media outlets such as television, including national stations and local. It is nearly impossible to gain a response and coverage in this critical area of bringing attention to PD. Is it because viewers are unaware, or is it insufficient for their ratings? I am not sure, but when I see the stories the media shares and the lack of information about Parkinson’s, it is shocking. 

As one of the fastest-growing neurological disorders worldwide, you may think the coverage would be much more effective and efficient. However, that is not the case, especially for local advocates. I have attended many local walks and events to raise awareness, but the media does not exist. 

We need a cure, but the key is teaching the world, and the media, celebrities, and all of us joining together can make a difference, but we are far from the needed media support. Unless a specific reporter is affected by PD through their family, responses are the noise of only crickets, which is heartbreaking. The amount of time media spends on stories that include violence and stories that do not apply to the regular everyday person or families and those affected by PD is shocking to me. 

We must reach all media outlets to gain attention for this critical movement and advance toward a cure and end of PD.

NBC, ABC, CBS, Fox, and every avenue and venue need to come to the table and help save lives. Their devotion to politics and crime stories is unmatchable; imagine if they spent a few moments ensuring coverage on PD awareness, research, and so many communities touched PD would be a game changer but as of today, in my experience, the lack of care and response is draining, frustrating and shocking. 

However, no matter what, we all must join hands, continue to call and write your local media from newspapers, television, and social media, and ensure we all are talking about, and pushing anyone we meet of the importance and urgency for a PD cure. Awareness through local, city and national attention would change the path and speed of a cure may be at all our doorsteps. 

Joy is a choice and a right. We all have a human need to practice it in our daily lives. Finding your niche, your groove, your thing, is how you find your bliss. The happy place where healing miracles happen. 

Nature’s Rhythm Speaks to Me

I love the sights and sounds of nature. Rushing rivers mingling with birdsong in springtime, the shifting rhythm of rain and the driving force of thunder and lightning. A stir of rising winds in the distance that often signals change. The song the ocean sings as it caresses the coastline between land and sea speaks to us all. In places like these, we find healing joy that moves with the flow of the universe. 

Motherhood Memories, Art and Music 

I love music with every fiber of my being. Making music and singing karaoke with my kids have been some of our best times. A shared taste in music and painting along with Bob Ross videos became a tradition that connected us across generations. Memories filled with awe and delight as I watched my children's musical and artistic talents blossom and grow.  

Writing Against all Odds

Over the years we learned new crafts while I lost my ability to do others, including my ability to type. For years I experienced burning pain and numbness in my hands due to nerve damage, carpal tunnel and radial tunnel issues that were never surgically corrected. 

Stubbornly I kept writing poetry and scribbling research notes in scrapbooks with fat markers. Never giving up my writer's dream. Holding on to my love of that artform by the skin of my teeth. 

Reclaiming Joy with Clay

While living in rural parts of the country, crafting helped me combat the loneliness of social isolation. Years previously I lost my ability to knit, make jewelry and I have terrible difficulty working the simplest clasp. I started working with clay and I experienced a healing connection. I am both shocked and amazed to discover my shaking and fumbling hands work for me more than against me.

Healing Power of Connection 

Reading, writing, storytelling, and advocacy are the center of my existence while I start life anew. Yes, and all I’ve learned is setting me free from most of my social isolation. While in the past I’ve gathered much of my seasonal bliss and healing flow from gardening, my PD symptoms caused multiple falls. This spring I sow my seeds of love in my stories, each one rooted in hope. It gives me great fulfillment to connect with the PD community and share what I’ve learned.

Walk Your Own Path 

How you tap into your bliss is to find what matters to you for reasons you can’t explain in words. Only in the feeling it gives you. Practice these activities and allow them to distract you from what ails you. Even if it’s only for a moment or two at a time. When you can find what brings you peace, and turn that into something you do regularly, it then becomes an exercise that makes room for cognitive healing. 

Rebirth Through Improv 

One of the most profound shifts in my emotional well being happened when I joined Robert Cochrane’s Jam for Joy improv program. What started as online fun and games became a powerful tool for healing. The day I learned how to “Yes, And”…life  and apply it as an exercise, it set my mind free in ways traditional therapy and self help books don’t . The longer I was involved in the program, the more my symptoms improved. 

Miracles Happen : Unlocking my Hands and Finding My Voice

The most miraculous improvement is the return of my ability to type. Two months into my first round of Cinema Therapy class in 2023, I transformed from having trouble highlighting people's work, into someone who can out-type a much younger version of myself. I still experience pain and off periods of time. It’s nothing like it was before. No medication changes, just finding connection and real emotional support healed me in many ways. Restoring my confidence and giving me a sense of self. 

In a nutshell, by finding my bliss through Robert Cochrane’s Cinema Therapy program, I found a way to reboot my brain. It taught me how to redirect the way I deal with stress, pain and past trauma. Helping me see life for what it can be instead of feeling limited by the negative stigma of what people say we can’t be because of PD. Thanks to the magic words: Yes, And…

It’s Up to You 

Find your bliss. Share your world. Connect with the PD community and above all find a way to tell your story. It doesn’t matter if you share it with an original work of art, a heartfelt song or like me,  a dream come true opportunity to write a screenplay with a wonderful group of talented people. When you can take the focus off what is wrong with you, and instead focus on what is not wrong with your life, you might just find a way to open doors into your wildest dreams. 

Join Our Team  

Yes, and, as the newly appointed secretary for Yes,And…eXercise!, I invite everyone to check out the latest happenings at www.yesandexercise.org Highlighting our Sandlot -  FIeld of Dreams and WIDS (What I Didn’t Say)  developing class projects. 

In celebration of Dave Parker's induction into the Baseball Hall of Fame, Yes, And…eXercise! is hosting a silent auction featuring autographed merchandise from the movie, The Sandlot to raise funds for a future Cinema Therapy class that will help members of the Dave Parker Foundation. You can learn more here: https://www.yesandexercise.org/sandlot 

Or by checking out the Dave Parker foundation homepage:https://www.daveparker39foundation.com/ 

In April we asked our members, 'What would you share about your experiences with YOPN with others living with YOPD?'.

Here are some of the responses.

What would you share about your experience with YOPN with others living with YOPD?
In my early years after diagnosis, a gray cloud came over my head. However, reading books from M.J. Fox and my faith in God gave me hope. Almost immediately I started physical therapy and after reading the benefits of diet and exercise, I started a very strict diet and a exercise routine that works for me. I was diagnosed at 48. I'm now 53 and in a lot of medications, but I continue to push forward despite my frequent bad days. I preach on Sundays and work in a little co-op which I love. Every moment that I spend with those people, I try to be as jovial as I can. The Spirit of God that is in me makes it happen. I pray that one day a cure will be found and we can be released from this hard disease. Until then, we must continue to move forward. Lean on God, lean on your family, lean on your good friends. Make your days better by socializing with people. It's rejuvenating. May God be with you and heal you. Don't stop fighting!

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What would you share about your experience with YOPN with others living with YOPD?
"It is possible YOPD may be fundamentally different than PD. Most all of the research is based on men. most all medications are dosed for men.

We are sailing in uncharted waters. As I see it, having been diagnosed 22 years ago at the age of 47, there are two ends of Parkinson's. On one end, research is really important. On the other end, care is really important.
In between the two ends is where most of us exist. The research end has a lot of catching up to do but the care and doesn't even know we exist. 
Hospitals and rehab centers are wholly unprepared for this new generation of Parkinson's patients. I was in rehab two years ago and was the female PD patient  they had ever seen.
There is  a presumption of caregiver. Not everyone has a care partner, family member or a community member dedicated to their care. Many of us are our own caregivers. When you are young and live on your own with Parkinson's disease, it's a much higher risk disease. We need to be considered and in the conversation.
When you are still relatively young, but have advancing Parkinson's disease there is no age or stage appropriate place to live with the right amount of assistance. The goals and models of assisted living facilities and senior living facilities are not congruent with the goals of Parkinson's patients who are fighting, not supporting, going downhill. 
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What would you share about your experience with YOPN with others living with YOPD?
"I am a resident of India diagnosed with Parkinson in 2022. In my peer group YOPD used to be an alien term and Parkinson is considered as an old man disease and is genetic in nature.
With no knowledge about YOPD and seeing the condition of Parkinson people life had become very depressive.
I found out about YOPN through Instagram. Was delighted to find about YOPD communities webinars members insights. It totally changed the way I was looking at my life. I found hope and strength and inspiration through YOPN.
It helped me understand the difference between YOPD and PD and I could explain it to my family as well.
In fact YOPN is the platform which published my YOPD story in the blog section which helped me declaring to the people around me about my condition.
My advice to people with YOPD is that stay connected online or offline and share your stories diagnosis medications and spread awareness. Reach out and remember you are not alone."

The world calls for diversity, culture, and respect for all of us. We also need more awareness for some cultures and segments of the population who do not have enough attention or support for those battling Parkinson’s Disease, such as the Latin population, Black population, Gay population, minorities, and so many other underserved populations. I do not see enough attention or advocacy for some specific populations, but together, we can bring change and support. 

You can bring the necessary change to shed light on this critical topic.  

Some have no access in their communities to medical professionals who specialize in movement disorders. Others must travel throughout the world to get their medical provider. 

The National Plan to End Parkinson’s Disease is a historic bill passed in 2024 to help raise awareness and research towards a cure. One specific goal is to also bring more attention to those who are sadly and often forgotten but need attention and assistance. You can contact your legislators to support change and get more help from those specific and diverse populations. As of today, I have not personally seen it. I have not heard about the bill implementation outcomes, but I hope it brings positive help and change. 

I have tried to bring awareness to those throughout the world who need more attention through blogs, books, and reaching out and partnerships together towards a PD cure and support until it is at all our doorsteps globally,

I am often surprised by the reality that so many are usually forgotten and how badly we need to voice awareness together. Still, in some instances, reaching specific populations who may feel it is tough alone.

No one based on cultural background or lack of resources should ever be forgotten.

Before being my caregiver for my mother, who battled PD and we lost in 2020, was my career: law enforcement and the legal field. As an attorney, police officer (Rsv), and PhD in the field of criminal justice, I dedicated my life to those family members who lost a loved one due to crime such as murder. Most of my research focused on the African American population throughout the United States and their loss and reintegration back into society; the results were shocking due to the lack of support and resources for this specific population. Often, in the criminal justice system, a family loses a loved one, but the family becomes a secondary victim and is usually forgotten by the process and system. By shedding light on this topic well, needed change and awareness can only come. I do feel this correlates to the Parkinson’s community as so many underserved populations are forgotten, and we need change now. 

I will continue to be a voice for everyone in this fight for a PD cure, and I hope you will join me because together, our reach and voices are much more substantial.

Your guide to traveling confidently with Parkinson’s—together.

Summer is here, the skies are clear, and the world is waiting. Parkinson’s may be part of your journey, but it doesn’t have to be your roadblock. With smart planning and the right support, travel can still be joyful, enriching, and accessible—whether you're heading out for a weekend escape or an international adventure.

Parkinson’s should never limit your ability to explore the world. Whether you're someone living with the condition or a care partner supporting a loved one, travel can be an empowering experience. It offers new perspectives, beautiful moments, and the kind of memories worth holding onto. With the right tools and mindset, there’s no reason Parkinson’s should keep you grounded.

Here are some essential travel tips to help you and your care team make the most of every trip:

Step 1: Before You Travel

Planning ahead is your best friend when it comes to traveling with Parkinson’s. A few extra steps before your trip can go a long way in ensuring a smooth experience for both of you.

✅ Talk to your neurologist
Discuss your travel plans, especially if you're crossing time zones or traveling for an extended period. Your care team may suggest adjusting medication timing or provide useful travel tips.

✅ Gather essential medical documents
Bring a list of medications, a letter from your doctor, and documentation for devices like deep brain stimulators (DBS), if needed. Care partners should keep a copy too.

✅ Use medication reminder apps
 Apple Health’s medication tracker can help maintain your medication schedule—especially across time zones.

✅ Pack smart
Keep all medications and documents in your carry-on luggage. Bring extra doses in case of delays and consider using a pill organizer. If you're a carer, double-check everything is easily accessible during the journey.

Step 2: At the Airport

Airports can feel overwhelming—but preparation goes a long way.

✅ Arrive early
Give yourself plenty of time. Arriving earlier than usual reduces stress and provides wiggle room for any unexpected delays.

✅ Let airport staff know
Inform security and airline staff about the condition. They are generally understanding and happy to offer assistance, whether with mobility needs or DBS devices.

✅ Use the Hidden Disabilities program
Many airports offer lanyards or badges for travelers with non-visible conditions like Parkinson’s. Wearing a sunflower lanyard helps staff quietly recognize that extra support may be needed.

✅ Request for wheelchair assistance if needed
Some airports are huge, ranging from hundreds of gates. Even if you don’t always use a wheelchair, it can ease long airport walks and reduce fatigue.

✅ Stay hydrated and dress comfortably
Long waits or flights can be tiring. Wear loose, comfortable clothes and supportive shoes. Bring a refillable water bottle and stay hydrated throughout the journey.

✈️ Step 3: On the Plane

Now that you're onboard, here’s how to keep things as smooth and comfortable as possible.

✅ Inform the cabin crew
Let a flight attendant know about the condition (and any mobility aids or needs). They can assist with storage, offer timely help, and keep an eye out during the flight.

✅ Set reminders for medications
Keep medication timing consistent by setting alarms on your phone or smartwatch. It’s easy to lose track in the air, especially on long flights.

✅ Take movement breaks
If it’s safe and possible, walk up and down the aisle or do gentle in-seat stretches to avoid stiffness and improve circulation.

✅ Pack comfort items
A neck pillow, snacks, compression socks, and noise-canceling headphones can make the flight more pleasant for both the person with Parkinson’s and their companion.

️ Step 4: On Your Vacation

Now it’s time to relax and enjoy.

✅ Choose accessible accommodations
Look for features like elevators, grab bars, walk-in showers, or ground-floor rooms. Confirm accessibility ahead of time with your hotel or host.

✅ Build in rest time
Don’t overpack the schedule. Breaks are essential, not optional. Fatigue can affect both travelers—plan accordingly.

✅ Be flexible and present
Parkinson’s is part of the trip, but it doesn’t define it. Savor the small joys, explore new places, and lean on each other when needed.

Wherever you go, Parkinson’s comes with you—but so does your strength, adaptability, and spirit. Whether you're traveling solo or side-by-side with someone you love, remember: the world is still yours to explore.

Travel boldly. You’ve got this—together.

Living with Parkinson’s disease is a journey fraught with challenges that often extend beyond the physical. While the motor symptoms are well-documented, the mental health implications are equally significant and deserve urgent attention. For people with Parkinson’s, understanding the psychological landscape and actively fostering mental wellness is vital for enhancing quality of life.

The Psychological Toll of Parkinson’s

The reality is stark: nearly half of people with Parkinson’s will face mental health issues, including anxiety and depression. The emotional burden can be heavy, exacerbated by the uncertainties that accompany a chronic illness. The decline in dopamine not only disrupts movement but also affects mood regulation, leading to feelings of hopelessness and distress. 

The social and emotional implications can feel isolating. Changes in lifestyle and the loss of independence can stir anxiety and depression, making it imperative to address these concerns head-on. We must shift the narrative: mental wellness is not secondary; it is a fundamental aspect of managing Parkinson’s.

Seeking Mental Health Support

Engaging with mental health professionals is paramount. Cognitive-behavioural therapy (CBT) has proven effective in alleviating depressive symptoms and anxiety in people with Parkinson’s. A meta-analysis found that CBT significantly reduced depression and anxiety levels in this population. 

Peer support groups also hold immense value. Sharing experiences with others who understand the journey can alleviate feelings of isolation, creating a sense of community that fosters emotional resilience. Research indicates that participation in support groups can lead to improved mental health outcomes and a greater sense of belonging.

Strategies for Enhancing Mental Wellness

1. Stay Active: Regular physical activity is a powerful antidote to mental health struggles. Exercise not only combats physical symptoms but also releases endorphins—nature’s mood lifters. A systematic review highlighted that physical exercise significantly improves mood and reduces anxiety and depression in people with Parkinson’s. Activities like walking, swimming, or even gentle yoga can significantly boost mood and help manage anxiety. 

2. Mindfulness Matters: Mindfulness and relaxation techniques can be game-changers for emotional well-being. Practices such as meditation and deep-breathing exercises promote a sense of calm and help manage stress. A study found that mindfulness-based interventions led to significant reductions in anxiety and depression among people with Parkinson’s.

3. Nutrition for the Mind: A balanced diet is more than just physical nourishment; it’s a cornerstone of mental health. Consuming a variety of fruits, vegetables, and omega-3-rich foods can support cognitive function and enhance mood. Research indicates that a Mediterranean diet, rich in antioxidants and healthy fats, is linked to better mental health outcomes. Staying hydrated is equally vital; even mild dehydration can affect mental clarity and emotional stability.

4. Cultivating Connections: Maintaining social ties is essential for emotional health. Engaging with friends, family, or support groups can provide a crucial lifeline, reducing feelings of loneliness. Research shows that social engagement is associated with lower rates of depression and improved quality of life in people with Parkinson’s. Participating in community activities or hobbies fosters a sense of belonging and purpose, both of which are vital for mental wellness.

Embracing a Holistic Approach

For people living with Parkinson’s disease, prioritizing mental wellness is not merely beneficial—it’s essential. By recognizing the interconnectedness of mental and physical health, patients can adopt a more holistic approach to their care. 

Incorporating effective strategies—such as psychological support, physical activity, mindfulness, proper nutrition, and social engagement—can lead to greater resilience and a richer quality of life. It’s time to champion mental wellness in the conversation around Parkinson’s, paving the way for a more compassionate and comprehensive approach to living well with this condition. By embracing these steps, people with Parkinson’s can cultivate hope and purpose, navigating the challenges of Parkinson’s with strength and resilience.

References

- Aarsland, D., Brønnick, K., Frank, A., & Klosinski, C. (2011). Neuropsychiatric symptoms in Parkinson’s disease. *Movement Disorders*, 26(3), 353-359.

- Cramer, H., Lauche, R., Langhorst, J., & Dobos, G. (2015). Mindfulness-based stress reduction for people with Parkinson’s disease: A randomized controlled trial. *Parkinsonism & Related Disorders*, 21(11), 1138-1144.

- Ebersbach, G., Giesinger, I., & Schulte, M. (2010). The role of physical exercise in the treatment of Parkinson’s disease. *Movement Disorders*, 25(12), 1791-1799.

- Kätsyri, J., Kallio, M., & Rantakokko, P. (2020). Cognitive-behavioral therapy for depression and anxiety in Parkinson’s disease: A meta-analysis. *Clinical Psychology Review*, 78, 101847.

- Katz, R., Henneman, E., & Wendel, C. (2012). Social engagement and quality of life in Parkinson’s disease. *Parkinson’s Disease*, 2012, 1-6.

- Shah, H., Robinson, L., & King, H. (2018). The effectiveness of support groups for patients with Parkinson's disease: A systematic review. *Neurodegenerative Disease Management*, 8(1), 21-30.

- Sofi, F., Abbate, R., Gensini, G.F., & Casini, A. (2010). Accruing evidence on benefits of adherence to the Mediterranean diet on health: A systematic review and meta-analysis. *Nutrition, Metabolism and Cardiovascular Diseases*, 20(8), 651-658.

Shedding light on the unknown Psychosocial side of PD is very important to me. I suffered with unspecified depression and anxiety alongside leg pain and gait issues for more than a decade before receiving my YOPD diagnosis. One of the most overlooked yet critical aspects of PD is its psychosocial impact, particularly the emotional toll it takes. Yet there are so many who either don’t know or would turn a blind eye to this very REAL symptom of Parkinson’s disease.   

Waves of confused emotions fill our days and haunt our nights. While our bodies and minds struggle to maintain sufficient dopamine levels. The combined effort to stay focussed, coordinate our movements and navigate daily tasks gets overwhelming. Apathy is a slippery slope straight to despair. It is fed by the negative stigma that plagues us when we are misunderstood. Parkinson’s Disease is still largely misunderstood. This is why our stories are so important. Specifically regarding how this crap affects our minds. 

I can tell myself all day long that I’m ok. Count my blessings and keep my chin up by always looking into the light in front of me. Standing up for our planet with love for future generations. My Mother Nature voice and persona who never gives up or gives in. 

While I don’t give up. The lows make all of us wish to give in at times. Where is the infamous “IN” people give themselves to? I dare not dream down that doom filled path. Still, I understand what it’s like to fight waves of paranoia. Fear I might never see my children again. Or wonder if I might wake up tomorrow unable to walk or talk. 

Yes, and I second guess every word I write, and wonder if I’m really making a difference. 

Then I look at all we’ve shared as a community. I hear our voices remixed on the wind. It lets me know that I’m loved and accepted. Yes, and provides comforting reminders that I am not alone. 

Doubt and worry about the future is a bloody wound on the mind's eye. Too many people with PD suffer in silence. Isolated by the very symptoms that need connection the most. Loneliness fuels self-doubt. Staying connected, sharing stories, and supporting one another isn’t just helpful—it’s essential.

This is why telling our stories is so important. People need to know how this disease affects the mind, not just the body.

There are days when I dont feel “fine”. It’s not easy to always look toward the light, I hold on to gratitude and draw strength from nature, from love, from holding on to hope for the future. I can’t and won't give up.

Still, I’d be lying if I said I didn’t feel the pull of darkness at times. The lows are brutal. Facing fear and fatigue makes me wonder how long I’ll be able to function. Like many mothers with loved ones far away. I worry and fret over when I might hold my children again. It’s hard to admit how much it all scares me.

We need to make it known mental health is a big part of this disease. Don’t ignore it. Don’t minimize it. Talk about it and support each other. Yes, and always love one another. 

Because in the end, our voices and our stories, our light and our love will melt the fog. Join me and help us shine a spotlight on what it’s really like to live with PD. www.yesandexercise.org 

Help us rebrand what the world knows about Parkinson’s disease. In Dr. Robert Cochrane’s Cinema Therapy classes the psysocial side of Parkinson’s is not ignored. In fact we unpack such complex emotions within the safe space created by the group. Breaking many people free from apathy and social isolation. I invite everyone to check out the link and see how Yes…and eXercise helps improve participants' wellbeing. The place where we play improv and learn life lessons that help us improve our quality of life. One day at a time.